Editor's Note: Chronic conditions and rare diseases don't discriminate, Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have…
65 roses. This phrase is often used in reference to cystic fibrosis; in fact, the origin of 65 roses is a young boy who couldn’t properly pronounce the name…
While many patients are grateful for their doctors and treatments, how many know why they are so passionate about what they do? In an interview with Dr. Patrick Flume,…
32nd Annual North American Cystic Fibrosis Conference (NACFC) NACFC will bring together people from across the medical field who have faced the challenge of treating cystic fibrosis firsthand. Attendees will…
According to an article from One News Page, the biopharmaceutical company Motif Bio was generously presented with an award from the Cystic Fibrosis Foundation. The award came in the form…
The National Organization for Rare Disorders has teamed up with Children's National Health System for the Rare Disease Institute. This will be the first center to primarily focus on and…
The Cystic Fibrosis Foundation (CFF) is hosting the North American Cystic Fibrosis Conference (NACFC) in Indianapolis, Indiana. The CFF is an amazing non-profit that aims to cure cystic fibrosis while…
Great Strides, hosted by the Cystic Fibrosis Foundation (CF Foundation) is the largest national fundraising event for cystic fibrosis. Over 125,000 people a year lace up their walking shoes to…
Christmas 2016 seems like a lifetime ago. In fact, I can't figure out if my hair grows twice as fast as it used to, or if time is passing at…
Sean Dean of Phoenix, AZ is no ordinary sophomore in high school. He is a second degree black belt, enjoys mixed martial arts, and also enjoys singing and dancing. You…
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