Acromegaly Community Patient-Focused Drug Development Meeting April 28th, 2020 This Patient-Focused Drug Development meeting is designed as a convergence of critical FDA officials, acromegaly patients, pharmaceutical companies, and other relevant…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families April 25th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
The ongoing coronavirus/COVID-19 pandemic has caused widespread uncertainty across the globe, and a lot of us have questions about what to do or what to expect. The rare disease community…
CureDuchenne Cares Workshops: Hear The Latest From Experts April 18th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
April is Sjögren's Syndrome Awareness Month. This is held annually in an effort to spread awareness about this syndrome, and has been held since 1998. Unfortunately, this disease receives little…
RARE on the Road: a Rare Disease Leadership Tour April 17th, 2020 Burlingame, CA The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates,…
Stand With HPP Live Webinar April 16th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information…
April 17th, 2020 is World Hemophilia Day. This event is held to help foster awareness about hemophilia and other related bleeding disorders. It is a day when this rare community…
April 15th, 2020 will be the 7th annual International Pompe Day, a day of recognition and fostering awareness around Pompe disease organized by the International Pompe Association. Like many rare…
CureDuchenne Cares Workshops: Hear The Latest From Experts April 4th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
Speakers: Cheryl French, Living with HAE & John Anderson Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families March 28th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
RARE on the Road: a Rare Disease Leadership Tour May 30th, 2020 Raleigh, NC The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates,…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families March 21st, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
A Professional Course for Healthcare Providers This course meets all Montana Board of PT requirements for 6.5 CE hours and is approved by the Montana Board of OT Practice. The…
Speakers: Jason A. Salganick, MD & Larissa C., Patient Ambassador Join us to learn more about ALK+ non-small cell lung cancer (NSCLC) and ALUNBRIG (brigatinib) as a treatment option for…
Speakers: William Blouin MSN, ARNP, CPNP Lorry Callaghan To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to…
CureDuchenne Cares Workshops: Hear The Latest From Experts March 14th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
Pompe Disease Patient-Focused Drug Development Meeting March 9th, 2020 This Patient-Focused Drug Development meeting is designed as a convergence of critical FDA officials, Pompe disease patients, pharmaceutical companies, and other…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families March 7th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
Speakers: Dawn Helfrich RN, MSN, APN Annette Gregory To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families February 22nd, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
The Patient and Family/Caregiver Forum February 22nd, 2020 Houston, Texas This free MDS patient forum is geared towards MDS patients, their families, and caregivers. Learn critical information about MDS, its…
Speakers: Robin Yawn RN, BSN Elizabeth Thirtyacre To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register,…
Speakers: Michelle Tran, DNP, FNP Stacy Ahearn To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here.…
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