Family Conference 2018 This conference will be an opportunity for BBS and LM families to meet and network with one another. Attendees will also be able to learn about the…
FREE educational program provided by CISCRP, The Center For Information & Study On Clinical Research Participation, created to educate the public about participating in clinical trial research.
Presenting the CRF 2018 Day of Hope Family Conference The event will be an opportunity for cystinosis patients and their families to share their experiences with one another and build…
The HDSA Research Webinar This free webinar will present research from Dr. Jack Reidling. Dr. Reidling has been conducting experiments with stem cells by using them to replace the dead…
On April 8th in Mystic Connecticut there was a special event. Over one hundred women, men, and children gathered in the Mystic ballroom to have their heads shaved! But why…
This conference will be an opportunity for patients to learn from highly regarded physicians and specialists about sarcoidosis. Patients and their families will have a unique chance to learn about…
Presenting the 2018 National Myasthenia Gravis Conference This conference is the largest gathering of the myasthenia gravis community in the country. This year, participants will converge to hear from disease…
Connect, Enpower, and Inspire This free workshop will available for both caregivers and LEMS patients. Participants will learn new strategies for promoting advocacy and the development of community. The event…
The 2018 National Patient Conference SSF's National Patient Conference is the an ideal opportunity for patients with Sjögren's syndrome and their families to learn more about what it means to…
Presenting the 40th Annual Family Conference Join NTSAD for three days of education, support, and empowerment for Tay-Sachs, Sandhoff, Canavan, and GM1 patients and their families. Adult: $320 (ages 13…
This conference presents an opportunity for medical professionals to share knowledge and learn more about new research advances in clinical care and discuss the future of the craniofacial field. The…
Peter Kay, a British comedian and actor, organised a screening of four episodes of his hit TV series Car Share in order to raise awareness and donations for a charity…
This conference will be a convergence of disease experts, patients, and professionals to discuss Ehlers-Danlos syndrome and other related genetic disorders. The event will be the first conference that the…
Grab your sneakers because the 2018 Liver Life Walk is on the way, hosted by The American Liver Foundation. Thousands of people will walk to advance liver health and wellness, one…
Presenting the 61st Annual Ataxia Conference (AAC) "Fighting for Freedom" Attendees have a lot of reasons to be excited about this year's AAC. There are multiple promising treatments in trials…
International PTEN, the Harmara Tumor Syndrome Foundation, will host a Patient Symposium in Huntsville, Alabama on March 25-26th, 2018. It will discuss PHTS cancer risks, screening requirements, daily management, research…
The LGS Foundation hosts the 3rd Annual Walk n' Wheel in Orlando, FL to support research, programs and services for patients with Lennox-Gastaut Syndrome. Registration is $15. Donations are accepted.…
Join The Coalition for Hemophilia B at their 12th Annual Symposium to improve the quality of life for those living with and treating Hemophilia B.
April 9th is promising to be a beautiful day this year. By then, spring should be in full swing. For some people that phrase rings quite literally. With the return…
A “Right to Try” bill is currently being discussed by Congress. Advocates on both sides of the story present valid points to either pass or stop the bill. That’s why…
The only conference in the United States that shows guidance as how to involve patients through the process of clinical research. Industry Fees: $1,595 Early Bird - available until 2/09/18 $1,695…
Muscular Dystrophy Association will host the 2018 Clinical Conference in Arlington, VA. The meeting will bring together scientific and medical experts from private practices, academia, industry and government. It will…
The Festival of Children hosts the RARE Carousel of Possible Dreams, a Dream Team Celebration in Chesterfield, Missouri on Saturday, March 10th, 2018. The event will be filled with fun:…
In 2017, more than 450 participants at this conference gathered to learn more about the most recent research, education and all things Batten Disease. The deadline to register is June…
According to an article from lymedisease.org, Dr. Raphael Stricker is slated to speak about the future of Lyme disease diagnostics at MyLymeData2018: Seeking Cures Together. This conference is intended primarily…
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