Could the study of Alzheimer's disease lead to treatments for GLUT1 deficiency syndrome? It's been known for a while that there's a link between Alzheimer's and how the brain metabolizes…
Cuando era una niña, Remi Savioz quería una cosa. Y no, no era un cachorro, una bicicleta, o incluso un viaje a Disneyland ... Remi lo que quería era una…
La mayoría de los padres están ansiosos de que las primeras palabras de su hijo. Pero como el Daily Mail en el Reino Unido informa, Stevie y David Taylor esperaron…
el blog de Honest Abe, un cajón de sastre sitio para juegos de video y la ciencia, ahora puede añadir campeón enfermedad rara con su descripción. El verdadero Honest Abe…
Si su médico le ha dicho que se podía comer pizza, carne y otros alimentos ricos en grasa al día es probable que registrarse para que la prescripción inmediatamente. Pero…
¿Alguna vez has oído hablar de la deficiencia de Glut1? Basada en una historia ofrecida en News-Medical, y no tenían los padres de su hija diagnosticadaa los 4 años de…
Glucosa. Esto significa que el azúcar, ¿verdad? Está en su cuerpo, ¿verdad? Pero, ¿cómo se transportan y cómo sabe que su cuerpo la cantidad que necesita para el transporte? Lo…
Congrats Patient Worthians! You made it to Friday! This week we have some interesting Myasthenia Gravis pain remedies. Additionally, we have a pretty sweet Acromegaly poster designed by one of our…
Sometimes a bit of skepticism is a good thing. RareConnect.org reports this was definitely true for Tina and Fernando when their sweet little boy, Nico, was diagnosed with epilepsy. At…
Epilepsy. Doose Syndrome. Lennox-Gastaut. While no parent expects to hear those words, he or she is even less raedy to learn that those words are wrong. RareConnect.org describes when Macie was only…
Writing on the Internet can feel a lot like screaming into the void. You never know who can hear you or who even cares. But with the rare disease community…
Most parents are eager for their child's first words. But as the Daily Mail in the UK reports, Stevie and David Taylor waited in vain for three years to hear…
Glucose. It means sugar, right? It's in your body, right? But how does it get transported, and how does your body know how much it needs to transport? Most importantly,…
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