The holidays are a time of fun, family, and for many of us, a time when our chronic health conditions tend to flare up. We don’t mean for that to…
If you are like me and have complete inability to regulate temperature, then you might be looking for some awesome accessories to make life a little less painful this winter…
Share the spirit of healing. Those with rare diseases seek healing all year round. The holidays are for a different kind of healing though, healing of the spirit and soul.…
Yes, it is the season of holidays. Happy Christmahanakwanzika! Or whichever holiday you celebrate! I hope you experience peace, love and joy this season.
The holidays are a time of fun, family, and for many of us, a time when our chronic health conditions tend to flare up. We don’t mean for that to…
If this holiday season finds you with extra love to share, then I hope can share a little bit to help fund research for a rare disease so that others…
Hey, a happy holidays meme without using red and green! Here’s wishing you peace and love during the holidays. Even if you don’t celebrate a specific holiday, I hope the…
If you’re like me with a chronic illness, then you have to watch what you eat! Especially around the holidays. I LOVE cranberry sauce but whenever someone else makes it,…
Happy Holidays! Many people spend their time running around trying to bake as much as they can, buy and wrap as many presents as they can, go to as many…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
