Unmask HPP Webinar Educational Event December 7th, 2020 at 6:00 pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment…
Unmask HPP Webinar Educational Event December 1st, 2020 at 6:30 pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment…
Unmask HPP Webinar Educational Event November 18th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option.…
Unmask HPP Webinar Educational Event November 5th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option.…
Unmask HPP Webinar Educational Event October 28th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option.…
Unmask HPP Webinar Educational Event October 22nd, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option.…
Unmask HPP Webinar Educational Event October 13th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option.…
Stand With HPP Live Webinar June 9th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information…
Stand With HPP Live Webinar May 28th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information…
Stand With HPP Live Webinar May 6th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information…
Stand With HPP Live Webinar April 16th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information…
Asfotase alfa is an enzyme replacement therapy meant to directly address the cause of hypophosphatasia. While more research is necessary, it has been shown to decrease the mortality rate and…
According to a story from Medical Xpress, a team of researchers affiliated with the University of Granada and the research organization CIBERFES have discovered a pair of new mutations linked…
2018 International HPP Meeting This is an invitation only event open to physicians, scientists, and researchers. The Soft Bones Scientific Advisory Board will be responsible for sending invitations and determining…
Advocates for people with rare diseases such as hypophosphatasia (HPP) are changing the world. Moms and dads, aunts and uncles, brothers, sisters, cousins, spouses and friends play a tremendous role…
According to Today, Quinn Hoover is an 8-year-old boy who lives in Nebraska. His body doesn’t produce enough alkaline phosphatase enzyme, causing his bones to be extremely “soft." The condition…
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