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mastocytosis

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The Mastocytosis Society – Support Group Meeting – Oklahoma City, OK

  • Post author:Meagan Fulps
  • Post published:April 7, 2018
  • Post category:

The Mastocytosis Society presents a support group meeting open to the public in Oklahoma City, OK. Dr. Miner will be speaking. Be sure to RSVP to Cheri Smith: [email protected]

Continue Reading The Mastocytosis Society – Support Group Meeting – Oklahoma City, OK

The Mastocytosis Society – Support Group Meeting – Springfield, MO

  • Post author:Meagan Fulps
  • Post published:February 10, 2018
  • Post category:

The Mastocytosis Society presents a support group meeting open to the public in Springfield, MO. Be sure to RSVP to Heather Largent: [email protected]

Continue Reading The Mastocytosis Society – Support Group Meeting – Springfield, MO

The Mastocytosis Society – Support Group Meeting – Austin, TX

  • Post author:Meagan Fulps
  • Post published:February 10, 2018
  • Post category:

The Mastocytosis Society presents a support group meeting open to the public in Austin, Texas. Be sure to RSVP to Cheri Smith: [email protected] Please put the meeting area in the…

Continue Reading The Mastocytosis Society – Support Group Meeting – Austin, TX
New Treatment in Development for Mastocytosis
Belova59 / Pixabay

New Treatment in Development for Mastocytosis

  • Post author:Samuel Sachs
  • Post published:January 26, 2018
  • Post category:mastocytosis/Rare Disease

Many cancer and blood specialists will not have encountered systemic mastocytosis. A new drug targets the underlying defect of the disease and will help put doctors on the lookout. Keep…

Continue Reading New Treatment in Development for Mastocytosis

The Mastocytosis Society – Support Group Meeting – Minneapolis, Minnesota

  • Post author:Meagan Fulps
  • Post published:January 20, 2018
  • Post category:

The Mastocytosis Society presents a support group meeting open to the public in Minneapolis, MN. Be sure to RSVP to Melissa Lovett: [email protected] [email protected]

Continue Reading The Mastocytosis Society – Support Group Meeting – Minneapolis, Minnesota

The Mastocytosis Society – Support Group Meeting – Cape Coral, Florida

  • Post author:Meagan Fulps
  • Post published:January 20, 2018
  • Post category:

The Mastocytosis Society presents a support group meeting open to the public in Cape Coral, Florida. Dr. Theoharides MD, PhD is guest speaking. Be sure to RSVP to Michele Kress:…

Continue Reading The Mastocytosis Society – Support Group Meeting – Cape Coral, Florida
Deciphera Enters Phase 3 Clinical Study for New Cancer Treatment

Deciphera Enters Phase 3 Clinical Study for New Cancer Treatment

  • Post author:Samuel Sachs
  • Post published:January 18, 2018
  • Post category:mastocytosis/Rare Disease

Deciphera Pharmaceuticals recently announced the initiation of a Phase 3 clinical study. The study aims to investigate the safety and effectiveness of a new drug targeting gastrointestinal stromal tumors. Keep…

Continue Reading Deciphera Enters Phase 3 Clinical Study for New Cancer Treatment
The Mastocytosis Society Hosts Support Group Meetings Around the Country
Source: Pixabay

The Mastocytosis Society Hosts Support Group Meetings Around the Country

  • Post author:Meagan Fulps
  • Post published:January 18, 2018
  • Post category:Mast Cell Activation Syndrome/mastocytosis

The Mastocytosis Society is an amazing organization that brings focus to patients with mastocytosis and mast cell activation diseases. They hope to bring awareness, as well as education to patients,…

Continue Reading The Mastocytosis Society Hosts Support Group Meetings Around the Country
Editor’s Choice: Rare Diseasing with Exercise and Dogs

Editor’s Choice: Rare Diseasing with Exercise and Dogs

  • Post author:Patient Worthy Contributor
  • Post published:February 24, 2017
  • Post category:Cystic Fibrosis/Idiopathic Pulmonary Fibrosis/IPF/mastocytosis/Pfeiffer Syndrome/Rare Disease

Get informed and gear up for Rare Disease Week this Monday! Start with our Editor's Choice. This week we have a sweet story about a pup and how he helps…

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Unbelievable Abilities of a Mastocytosis Service Dog in NC
[Source: pixabay.com]

Unbelievable Abilities of a Mastocytosis Service Dog in NC

  • Post author:Al Pendleton
  • Post published:February 16, 2017
  • Post category:mastocytosis/Rare Disease

We’ve all walked passed a seeing eye dog on duty. The ability of the dogs (and trainers) to learn and react to so much in a safe way is utterly…

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4 Reasons My Mastiff Would Fail as a Mastocytosis Service Dog
Source: Pixabay.com

4 Reasons My Mastiff Would Fail as a Mastocytosis Service Dog

  • Post author:Sabina Kennedy
  • Post published:February 6, 2017
  • Post category:mastocytosis/Rare Disease

If you're a dog owner, you probably already know just how awesome dogs are. They fill your life with love, loyalty, fur, and plenty to smile about. For one little…

Continue Reading 4 Reasons My Mastiff Would Fail as a Mastocytosis Service Dog
Editor’s Choice: Doctors Get Sick Too

Editor’s Choice: Doctors Get Sick Too

  • Post author:Patient Worthy Contributor
  • Post published:December 2, 2016
  • Post category:Ankylosing Spondylitis/mastocytosis/Myasthenia Gravis/Rare Disease/Tourette syndrome

Happy December Friends! Ah, the week after Thanksgiving is always easy for me knowing Christmas is just a few weeks away! This week, we have a story about a doctor with…

Continue Reading Editor’s Choice: Doctors Get Sick Too
Maybe You’ll Be Amazed When You Learn About Mastocytosis
Source: pixabay.com

Maybe You’ll Be Amazed When You Learn About Mastocytosis

  • Post author:Erica Zahn
  • Post published:November 18, 2016
  • Post category:mastocytosis/Rare Disease

Mastocytosis is a rare immune disorder that is broken down into two categories: cutaneous (CM) systemic (SM) It affects men, women, and children in equal numbers. Children are more likely to have…

Continue Reading Maybe You’ll Be Amazed When You Learn About Mastocytosis
Mastocytosis is the Itchiest Disease You’ve Never Heard of

Mastocytosis is the Itchiest Disease You’ve Never Heard of

  • Post author:Erica Zahn
  • Post published:November 2, 2016
  • Post category:mastocytosis/Rare Disease

Have you ever noticed when you have a cut, and it's healing, you sometimes feel itchy? Those are the mast cells helping your body to heal while helping defend against…

Continue Reading Mastocytosis is the Itchiest Disease You’ve Never Heard of
How The French Are Coming To Save Your Life

How The French Are Coming To Save Your Life

  • Post author:Alisha Stone
  • Post published:April 18, 2016
  • Post category:mastocytosis/Rare Disease

Well, the French are at it again—thank goodness! French pharmaceutical company AB Science, announced in 2015 that it hit its endpoints in a phase lll clinical trial for human subjects who…

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Meme Awareness – Mastocytosis

Meme Awareness – Mastocytosis

  • Post author:Patient Worthy Contributor
  • Post published:April 15, 2016
  • Post category:Rare Disease

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Meme Awareness – #MastocytosisCure

Meme Awareness – #MastocytosisCure

  • Post author:Patient Worthy Contributor
  • Post published:April 15, 2016
  • Post category:Rare Disease

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Mastocytosis Awareness Meme

Mastocytosis Awareness Meme

  • Post author:Patient Worthy Contributor
  • Post published:April 14, 2016
  • Post category:Rare Disease

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Meme Monday Infographic – Sjögren’s and Mastocytosis

Meme Monday Infographic – Sjögren’s and Mastocytosis

  • Post author:Patient Worthy Contributor
  • Post published:April 4, 2016
  • Post category:Rare Disease

Sjögren's Disease and Mastocytosis are two very different illnesses, but have one thing in common: they are VERY rare. The infographic below provides information about what the disease is, prevalence…

Continue Reading Meme Monday Infographic – Sjögren’s and Mastocytosis
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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