MDS Patient & Family/Caregiver Forum November 5, 2022 Presenters: Stephen Chung, MD Yazan Madanat, MD Madhuri Vusirikala, MD Amber Thomassen, AGPCNP-BC, AOCNP Whether you are a newly diagnosed patient, a…
The 1st International Workshop on Myelodysplastic Syndromes was held this year in Miami, FL from June 24-26. This in-person event was a convergence of researchers and clinicians to discuss advances…
MDS Patient & Family/Caregiver Forum September 10, 2022 Presenters: Paul J. Shami, MD and Afaf Osman, MD, Huntsman Cancer Center Ashley Moncrief, RN, BSN, Vanderbilt University Medical Center Whether you…
Karyopharm Therapeutics, a pharmaceutical company focusing on novel cancer therapies, has issued a statement via PR Newswire that the FDA has granted regulatory designations to eltanexor, Karyopharm’s Selective Inhibitor…
In an August 3rd, 2022 news release from Syros Pharmaceuticals (“Syros”), the company shared that its product tamibarotene had received a positive opinion for its Orphan Drug designation application.…
Webinar: Living With Chronic Fatigue: I'm Not Just Tired July 23, 2022 with Brandi Reeves, MD; Lineberger Comprehensive Cancer Center, UNC-Chapel Hill School of Medicine, Chapel Hill, NC Attend this…
Webinar: Becoming a Partner in Your Care: MDS Support Group June 25, 2022 with Sara M. Tinsley, PhD, APRN, AOCN, Moffitt Cancer Center, Tampa, FL Attend this webinar dedicated to…
The Aplastic Anemia, MDS, and PNH Virtual Support Group June 25, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia,…
Webinar: The MDS Widow: Sharing and Moving Forward June 23, 2022 Rochelle Ostroff-Weinberg, widow of Robert Weinberg, invites you to join her and other MDS widows on International Widows’ Day. To…
The Aplastic Anemia and MDS International Foundation's Transplant for MDS Virtual Support Group June 15, 2022 AAMDSIF is pleased to announce that we will host a support group for patients…
The Aplastic Anemia and MDS International Foundation's Pediatric Parents Virtual Support Group June 14, 2022 This virtual support group is designed to support pediatric parents whose children have been diagnosed…
The Aplastic Anemia and MDS International Foundation's MDS Virtual Support Group June 11, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with…
The Aplastic Anemia, MDS, and PNH Virtual Support Group May 28, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia,…
Webinar: Precision Medicine in MDS and AML May 21, 2022 with Rory Shallis, MD, Yale School of Medicine, New Haven, CT Attend this webinar to learn about the role of…
A recent article in Labroots stated that the majority of patients who have preleukemic disorders may not be candidates for leukemia. Estimates are that there are about ten to fifteen…
Webinar: Advances in our Understanding of the Management of MDS March 26, 2022 with Michael Keng, MD, University of Virginia, Emily Couric Clinical Cancer Center, Charlottesville, VA Attend this webinar…
Webinar: Optimizing Transfusion Support in MDS February 12, 2022 with Lindsay R. Wilde, MD, Sidney Kimmel Cancer Center and Thomas Jefferson University Hospital, Philadelphia, PA Attend this webinar to learn…
Orphan drug designation is granted to drugs or biologics intending to treat, diagnose, or prevent rare diseases or conditions. Within the United States, a rare condition is one affecting under…
Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…
Karyopharm Therapeutics has just announced that Eltanexor, their investigative therapy for myelodysplastic syndromes (MDS), has been given Orphan Drug Designation by the FDA. This designation means that the FDA believes…
Each year, approximately 1 in every 1 million infants is diagnosed with pediatric myelodysplastic syndromes (MDS), a group of rare disorders characterized by the abnormal or deficient formation of blood…
An article in PubMed dated October 8, 2021 outlines immune therapies treating myelodysplastic syndrome (MDS) and acute myeloid leukemia (AML) patients. Both cancers are hematologic malignancies that begin in the…
Webinar: Focus on Understanding Clinical Trials and How to Identify the Right One for You January 22, 2022 with Andrew M. Brunner, MD, Massachusetts General Hospital, Assistant Professor of Medicine,…
Over the past few weeks, Centenary College has partnered with Be The Match to host a stem cell donor drive. The first two drives were on November 18th and 19th,…
CAR T Cell Therapy in MDS/AML October 16, 2021 Speaker: David A. Sallman, MD, Moffitt Cancer Center This informational webinar will focus on a treatment approach called CAR T-cell therapy,…
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