Researchers Uncover New Approach to Stem Cell Therapy which Could Effectively Treat Multiple Sclerosis

Stem Cell Therapies While stem cell therapies hold a great deal of promise for many rare diseases, there is still a lot that we don't understand. Experimental stem cell therapies…

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New Bill Could Allow Easier Access to Complex Rehabilitation Technology for Rare Disease Patients

H.R. 2408 H.R. 2408 is a new piece of federal legislation otherwise known as the "Ensuring Access to Quality Complex Rehabilitation Technology Act." Essentially, this act creates a new category…

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This Neurologist is Committed to Developing New Therapies for Multiple Sclerosis, but Challenges Lie Ahead
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This Neurologist is Committed to Developing New Therapies for Multiple Sclerosis, but Challenges Lie Ahead

According to a story from CityScene, Ohio State University's Dr. Michael Racke is considered one of the country's cutting edge researchers in the field of multiple sclerosis treatment. He is…

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2019 Marks the 10 Year Anniversary of the Multiple Sclerosis Association of America’s Art Showcases
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2019 Marks the 10 Year Anniversary of the Multiple Sclerosis Association of America’s Art Showcases

According to a story from Multiple Sclerosis News Today, 2019 is the tenth year that the Multiple Sclerosis Association of America (MSAA) has conducted its Art Showcases initiative. The program…

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Sisters with Multiple Sclerosis Share Their Scary Stevens-Johnson Syndrome Story In an Effort to Spread Awareness

An Unexpected Emergency Kristin Hardy and her sister Margaret are no strangers to rare disease. Kristin has primary progressive multiple sclerosis (MS) and Margaret has relapsing-remitting multiple sclerosis. Margaret also…

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Study Shows a Bacteria Found in the Gut is an Effective Treatment for Multiple Sclerosis

Doctor Ashutosh Mangalam recently conducted a study examining the affect of Prevotella histicola, or P. histicola, a bacteria found in the human gut, as a treatment for multiple sclerosis (MS). Specifically, he…

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How Changing to Outcome-Based Reimbursement Models is Better for Rare Disease Patients

Shifting Contracts Over the years the United States healthcare system has shifted more toward reimbursement models that are outcome-based instead of service-based. In essence, this means that instead of paying…

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Study Shows We Need Better Awareness of Pediatric Onset Multiple Sclerosis to Improve Patient Care
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Study Shows We Need Better Awareness of Pediatric Onset Multiple Sclerosis to Improve Patient Care

Multiple Sclerosis (MS) was long believed to be an illness that could only affect adults. In fact, the pediatric form of this disease was not discovered until just over 10…

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Study Confirms Multiple Sclerosis is Twice as Prevalent as We Thought
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Study Confirms Multiple Sclerosis is Twice as Prevalent as We Thought

For years the accepted estimate of multiple sclerosis (MS) patients living in the United States was 400,000. A recent study, funded by the National Multiple Sclerosis Society (NMSS) has confirmed that number is…

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New Orphan Drug Designation for Potential Spinocerebellar Ataxia Treatment
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New Orphan Drug Designation for Potential Spinocerebellar Ataxia Treatment

Spinocerebellar Ataxia (SCA) refers to a group of neurodegenerative disorders. Ataxias are a component of the nervous system which control movement. SCA occurs when the ataxias in the brain or spinal…

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‘Mountain Man’ Maintains Work Out Regimen with ALD: A Wall Street Journal Profile 
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‘Mountain Man’ Maintains Work Out Regimen with ALD: A Wall Street Journal Profile 

Whose ready for some Monday motivation to get your week started? Readers of the Wall Street Journal might be familiar with their "What's Your Workout?" series, profiling someone's fitness and…

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