How Changing to Outcome-Based Reimbursement Models is Better for Rare Disease Patients

Shifting Contracts Over the years the United States healthcare system has shifted more toward reimbursement models that are outcome-based instead of service-based. In essence, this means that instead of paying…

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Study Shows We Need Better Awareness of Pediatric Onset Multiple Sclerosis to Improve Patient Care
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Study Shows We Need Better Awareness of Pediatric Onset Multiple Sclerosis to Improve Patient Care

Multiple Sclerosis (MS) was long believed to be an illness that could only affect adults. In fact, the pediatric form of this disease was not discovered until just over 10…

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New Orphan Drug Designation for Potential Spinocerebellar Ataxia Treatment
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New Orphan Drug Designation for Potential Spinocerebellar Ataxia Treatment

Spinocerebellar Ataxia (SCA) refers to a group of neurodegenerative disorders. Ataxias are a component of the nervous system which control movement. SCA occurs when the ataxias in the brain or spinal…

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‘Mountain Man’ Maintains Work Out Regimen with ALD: A Wall Street Journal Profile 
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‘Mountain Man’ Maintains Work Out Regimen with ALD: A Wall Street Journal Profile 

Whose ready for some Monday motivation to get your week started? Readers of the Wall Street Journal might be familiar with their "What's Your Workout?" series, profiling someone's fitness and…

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New Study Reveals That Spinal Fluid Could Help Predict Multiple Sclerosis Progression
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New Study Reveals That Spinal Fluid Could Help Predict Multiple Sclerosis Progression

According to a story from medicalxpress.com, a recent study from the University of Birmingham discovered that the progression of multiple sclerosis could be predicted by spinal fluid analysis. This could…

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