Company Raises $14 Million Towards Sanfilippo Syndrome and Other Rare Disease Research
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Company Raises $14 Million Towards Sanfilippo Syndrome and Other Rare Disease Research

According to a story from Sanfilippo News, the healthcare tech company RDMD has recently announced that it has raised $14 million in Series A financing that will be dedicated towards…

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Can a Brain Implant Treat Dementia Caused by Sanfilippo Syndrome? A Boy’s Story Offers Hope
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Can a Brain Implant Treat Dementia Caused by Sanfilippo Syndrome? A Boy’s Story Offers Hope

According to a story from metro.co.uk, Harley Bond was three years old when he was first diagnosed with Sanfilippo syndrome type B, a rare progressive genetic disorder. Now five years…

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Licensing Agreement Struck for an Experimental Sanfilippo Syndrome Drug
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Licensing Agreement Struck for an Experimental Sanfilippo Syndrome Drug

According to a story from publicnow.com, the drug development company Sarepta Therapeutics recently announced that is has completed negotiations for a licensing agreement with Lysogene, a biopharmaceutical company. This agreement…

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After Reviewing Publications About MPS III, Researchers Say More Studies Need to be Carried Out
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After Reviewing Publications About MPS III, Researchers Say More Studies Need to be Carried Out

Researchers have carried out a literature review to investigate MPS III. After reviewing forty-six papers, they concluded that more research needs to be carried out. You can find the original study…

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The Merrill Family Faces the Challenges of Sanfilippo Syndrome Every Day. Now They Are Fundraising to Help Others
Photo courtesy of Terrence Merrill

The Merrill Family Faces the Challenges of Sanfilippo Syndrome Every Day. Now They Are Fundraising to Help Others

According to a story from tapinto.net, the Merrill family was crushed upon learning that their five-year-old daughter Leila was born with Sanfilippo syndrome, a lysosomal storage disease that ultimately causes…

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