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Daily Archives: June 5, 2015

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Still no diagnosis? Could Watson be the answer?

Still no diagnosis? Could Watson be the answer?

  • Post author:Patient Worthy Contributor
  • Post published:June 5, 2015
  • Post category:Rare Disease

Ahh the age of machines, yep we're in it. Technology has taken over. A few decades ago, when someone talked about technology, you thought about Orwell's novel 1984, science fiction movies about machines and artificial intelligence…

Continue Reading Still no diagnosis? Could Watson be the answer?
NOMID: a.k.a. CINCA
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NOMID: a.k.a. CINCA

  • Post author:Patient Worthy Contributor
  • Post published:June 5, 2015
  • Post category:CAPS/Neonatal onset multisystem inflammatory disease/Rare Disease

No, not cinco. "CINCA"! CINCA stands for chronic infantile neurological cutaneous articular syndrome. NOMID stands for Neonatal Onset Multisystem Inflammatory Disease. So is CINCA really the same thing as NOMID?…

Continue Reading NOMID: a.k.a. CINCA
Pfizer Bids For Swedish Maker of Treatment for NOMID

Pfizer Bids For Swedish Maker of Treatment for NOMID

  • Post author:Patient Worthy Contributor
  • Post published:June 5, 2015
  • Post category:CAPS/Neonatal onset multisystem inflammatory disease/Rare Disease

Looks like Pfizer wants to buy a Swedish company who provides a treatment for neonatal-onset multisystem inflammatory disease, (NOMID). NOMID belongs to a family of conditions known as Cryopyrin-Associated Periodic…

Continue Reading Pfizer Bids For Swedish Maker of Treatment for NOMID
Doctor Said Crazy, Her Willpower Knew Better

Doctor Said Crazy, Her Willpower Knew Better

  • Post author:Patient Worthy Contributor
  • Post published:June 5, 2015
  • Post category:HAE/Rare Disease

Meet the Attwood family. Out of the 8 family members present, 4 of them are living with Hereditary Angioedema. The heart of the family is led by a strong women…

Continue Reading Doctor Said Crazy, Her Willpower Knew Better

“Have it your way” – your CVID treatment

  • Post author:Patient Worthy Contributor
  • Post published:June 5, 2015
  • Post category:CVID/Rare Disease

Just because Burger King ditched "have it your way" as a slogan doesn't mean you have to! Once diagnosed, living with Common Variable Immunodeficiency (CVID) requires lifetime infusion treatment. The pillar of treatment…

Continue Reading “Have it your way” – your CVID treatment

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