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Daily Archives: October 20, 2015

Home » Archives for October 20, 2015

20 Shocking Songs About Chronic Disease That Will Spill Your Coffee

  • Post author:Patient Worthy Contributor
  • Post published:October 20, 2015
  • Post category:Dystonia/Homozygous Familial Hypercholesterolemia/Narcolepsy/Rare Disease

Here at PatientWorthy, we think laughter can be the best medicine. Ironic humor is sorta our thing. But to those easily offended, or perhaps even moderately intolerant, we suggest you…

Continue Reading 20 Shocking Songs About Chronic Disease That Will Spill Your Coffee
One Mother’s Fight Against PI Has Now Benefited Thousands

One Mother’s Fight Against PI Has Now Benefited Thousands

  • Post author:Patient Worthy Contributor
  • Post published:October 20, 2015
  • Post category:Primary Immunodeficiencies/Rare Disease

Ellicott City, Maryland | President Marcia Boyle has spent decades advocating for people with immune deficiencies. Her own son was diagnosed more than 30 years ago when he was an…

Continue Reading One Mother’s Fight Against PI Has Now Benefited Thousands

A Wheelchair Bound Girl Just Wanted to Dance, This Organization Made it Happen

  • Post author:Rebekah
  • Post published:October 20, 2015
  • Post category:Dystonia/Rare Disease

Imagine having a disorder that controls your movements. A disorder that causes painful muscle contractions that can’t be stopped. Imagine being in a wheelchair because of this....and wanting to dance.…

Continue Reading A Wheelchair Bound Girl Just Wanted to Dance, This Organization Made it Happen
If You’ve Ever Wanted to Quit, This Grad with FCAS Has a Message for You

If You’ve Ever Wanted to Quit, This Grad with FCAS Has a Message for You

  • Post author:Rebekah
  • Post published:October 20, 2015
  • Post category:CAPS/FCAS/Rare Disease

Aaron is a twenty-four year old college graduate living in Alabama. He’s an entrepreneur who majored in small business management. His father is a pastor and he has three siblings.…

Continue Reading If You’ve Ever Wanted to Quit, This Grad with FCAS Has a Message for You

OF INTEREST


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X-Linked Hypophosphatemia: Unnderstanding this Hereditary, Progressive, and Lifelong Condition


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Catalyst’s LEMS Aware Podcast Helps Connect Patients

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