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Daily Archives: October 21, 2015

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5 True or False Facts About Empires’ Lucious Lyons’ Myasthenia Gravis

  • Post author:Patient Worthy Contributor
  • Post published:October 21, 2015
  • Post category:Myasthenia Gravis/Rare Disease

Does the name Myasthenia Gravis sound slightly familiar? Probably not, but if you're a fan of the show #Empire, you came across it when Lucious Lyon was famously diagnosed with…

Continue Reading 5 True or False Facts About Empires’ Lucious Lyons’ Myasthenia Gravis
Marty and the White House Tell Us What #BacktoFutureDay is Really About

Marty and the White House Tell Us What #BacktoFutureDay is Really About

  • Post author:PW Blogger
  • Post published:October 21, 2015
  • Post category:Rare Disease

In recognition of Back to the Future day, the exact date that Marty Mcfly traveled to in 1985,  The Micheal J. Fox Foundation and the White House are encouraging speculation…

Continue Reading Marty and the White House Tell Us What #BacktoFutureDay is Really About
8 Ways Caregivers and Friends Can Support People with Narcolepsy

8 Ways Caregivers and Friends Can Support People with Narcolepsy

  • Post author:Alisha Stone
  • Post published:October 21, 2015
  • Post category:Narcolepsy/Rare Disease

To all of the friends and families of people who have narcolepsy or symptoms of narcolepsy: LISTEN UP! In case you weren’t aware, narcolepsy is a serious and chronic, yet…

Continue Reading 8 Ways Caregivers and Friends Can Support People with Narcolepsy
10 Do’s and Don’ts When You See a GLUT1 DS Child Have a Seizure

10 Do’s and Don’ts When You See a GLUT1 DS Child Have a Seizure

  • Post author:Alisha Stone
  • Post published:October 21, 2015
  • Post category:GLUT1 DS/Rare Disease

California is home to a large number of amusement parks that are beloved by thousands of children and their families. Of course we love theme parks; it’s American as apple…

Continue Reading 10 Do’s and Don’ts When You See a GLUT1 DS Child Have a Seizure
Half a Million People Are Affected, So Why is This a Secret?

Half a Million People Are Affected, So Why is This a Secret?

  • Post author:Erica Zahn
  • Post published:October 21, 2015
  • Post category:Dystonia/Rare Disease

Eight years ago, Gina Rosendall-Saucedo received a diagnosis for her persistent movement disorder that she never expected. After an 18-month search for answers, she finally had one, but it was…

Continue Reading Half a Million People Are Affected, So Why is This a Secret?

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