Editor’s Choice Weekend Roundup: It’s #NERVEmber Month!

We are kicking off #NERVEmber!

We are very excited to be a part of this campaign to shed some light on chronic illnesses like CRPS/RDS that can greatly effect the nerves and cause immense pain.

Along with our #NERVEmber launch article, we have some other fantastic pieces from this past week just for your reading pleasures.

So sit back and enjoy another week of Editor’s Choice posts!

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Did you know it’s NERVEmber?

Did we mention it was #NERVEMBER!

Follow us all month long as we publish awesome stories to raise awareness for these damaging chronic illnesses.

Who knows, the VP of the Central Pain Syndrome Foundation may even stop by!

[/one_half_last] [one_half] Man pondering

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What in the World is HAE in 5 Pictures

Sometimes it’s hard to explain your rare disease. NO matter what stories you tell or examples you give, so people still just don’t get it.

Well for all of those living with HAE, we have a solution for you! Share this post and inform people with the wonderful language of imagery.

 

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receiving award

 

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Dysautonomia Can’t Dampen This Girl’s Ambition

Words don’t really give Nisa’s story much justice. After receiving a diagnosis for POTS, its easy to totally feel defeated and quit.

Nisa does the exact opposite and it ended up getting her national recognition among the government. If you can’t tell, we are big fans!

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kids looking at video screen

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3 Real Ways This Video Can Teach You How to Advocate for PI

Sometimes the hardest part about having a family member be diagnosed with a rare disease is knowing what in the world to do next.

Faced with this same difficulty with her son’s PI diagnosis, Amy decided she could use her experiences to help others. In a series of videos, Amy outlines how you can advocate with your son or daughter living with PI.

Here are the 3 nuggets we took from her!

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