What Are the Invisible Struggles of Invisible Illness?

“I’m tired of dying and I fear I’ll be dying for the rest of my life.”

This is a powerful truth for anyone dealing day-to-day with a chronic condition, but for those with an invisible illness, it’s a truth often unspoken.

Well, not today.

What started as two chronic illness bloggers–Leah and Catherine--talking privately about their struggles with rare diseases, has become something even louder.

Catherine gave voice to her experiences in the form of a deeply heartfelt poem. Through this poem, she and Leah became joined by nine others devoted to making invisible struggles seen.

Each of them is different in their appearance, birthplace, and condition, but they share this poem to be understood. To be heard.

So all we ask of you is to listen. Watch the video of the poem here.


Kiki Jones

Kiki Jones

Kiki’s family loves to say, “People are like a baking project. At some point, they’re just done and they’re who they’re going to be.” Well, Kiki still has some baking to do, and she learns a lot from her loved ones living with chronic conditions, including mental illness and Behcet’s disease. With a BA in English, she’s using her skills to tell the stories of people like them.

Share this post

Share on facebook
Share on twitter
Share on linkedin
Share on pinterest
Share on print
Share on email