November 30, 2015 – Patient Worthy

CAPS: When Genes Are Altered

Post author:James Stone
Post published:November 30, 2015
Post category:CAPS Rare Disease

Let's take a trip back in time to the year 2001: A new president is sworn into office; the Global War on Terror begins; and a discovery is made on…

Meme Monday: Our 5 Favorite Holiday Memes to Start the Season

Post author:Rebekah
Post published:November 30, 2015
Post category:Rare Disease

The family has left town. The leftovers are dwindling. And yes, carols have once again dominated the airways. All that means is.... Thanksgiving was awesome, but it's Christmahanakwanzika time! But…

A NOMID Drug Changed This Little Girl’s Life

Post author:PW Blogger
Post published:November 30, 2015
Post category:CAPS Neonatal onset multisystem inflammatory disease Rare Disease

Say it with me: "NOH-mid" (or if you prefer, Neonatal-Onset Multisystem Inflammatory Disease...) "NOMID...is a rare disease that is often fatal. This video tells the story of Kayla Martínez, who was…

I got a fever, and the only prescription for FCAS is...

I Got A Fever, And The Only Prescription for FCAS Is…

Post author:James Stone
Post published:November 30, 2015
Post category:CAPS FCAS Rare Disease

If you know the '90's with some clue about pop culture, the start of this headline means something to you. But "FCAS"? Maybe not... At the close of the 90's,…

We Need A Hero!

This is “MARVEL” (not a comic): Molecule May Treat Muckle-Wells Disease

Post author:James Stone
Post published:November 30, 2015
Post category:CAPS Muckle-Wells Syndrome Rare Disease

When I see "Marvel" and a picture like the one below... ...I see the makings of a superhero! "A team of researchers at Trinity College Dublin has unearthed what they…