Researchers in rare disease find it very challenging to find specimens. The Newborn Screening Translational Research Network (NBSTRN), has developed an easy way for researchers to access specimens through the…
Hey, want to know how to really ruin the day for someone living with excessive daytime sleepiness (EDS)? Just tell them “Oh, I get tired a lot too.” Apart from…
News services recently picked up a fascinating story that I think everyone should read! Little 8-year-old Kayleigh Petersen, from East Brunswick, New Jersey, stunned a packed crowd of loyal hockey…
So here’s a nice antidote to all those stories about greedy pharma execs soaking patients for ultra-expensive treatments. There’s a new approach to contrpay-acting between insurance companies and pharmaceutical companies…
This month, I came across the most refreshing article written by Caroline Newman and featured in UVA Today's Art & Culture section about one of the longest living cystic fibrosis survivors.…
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