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Daily Archives: December 29, 2015

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HAE Caregiver Doesn’t Stop at “Til Death Do Us Part”

HAE Caregiver Doesn’t Stop at “Til Death Do Us Part”

  • Post author:Lady Kehveen Abernathy
  • Post published:December 29, 2015
  • Post category:HAE

As reported by the the Northan Onterio Medical Journal, Vaugn Ungar, native of Kapuskasing, died in 2011 of a rare disease called Hereditary Angioedema--he was only 58 years old. Hereditary Angioedema,…

Continue Reading HAE Caregiver Doesn’t Stop at “Til Death Do Us Part”
This Woman Found Her Destiny Helping Others In A Surprising Way

This Woman Found Her Destiny Helping Others In A Surprising Way

  • Post author:Winnie Nash
  • Post published:December 29, 2015
  • Post category:CVID/Primary Immunodeficiencies/Rare Disease

Mary Vicencia knows what it’s like to be sick as a dog. For a while, she was basically an expert in feeling downright bad. In fact, she’s a lot like…

Continue Reading This Woman Found Her Destiny Helping Others In A Surprising Way
This Woman Lost Her Father, See Why the World Mourns

This Woman Lost Her Father, See Why the World Mourns

  • Post author:Kiki Jones
  • Post published:December 29, 2015
  • Post category:Dystonia/Rare Disease

“We all need role models who fuel our desire to make the world a better place. Mine is my dad.” These are the opening words of a powerful blog post…

Continue Reading This Woman Lost Her Father, See Why the World Mourns
#NewYearNewYou Dysautonomia Health Goals in 2016 Part 1

#NewYearNewYou Dysautonomia Health Goals in 2016 Part 1

  • Post author:Patient Worthy Contributor
  • Post published:December 29, 2015
  • Post category:Dysautonomia/POTS

With the new year approaching I've been thinking of ways that I can be more involved with my health. Not the standard lose weight and exercise nonsense like most people…

Continue Reading #NewYearNewYou Dysautonomia Health Goals in 2016 Part 1
Coping While Caring for Someone with Cystic Fibrosis

Coping While Caring for Someone with Cystic Fibrosis

  • Post author:Erica Zahn
  • Post published:December 29, 2015
  • Post category:Cystic Fibrosis

No matter what disease or disability your loved one has, being a caregiver is a lonely business. After all, aren't you the one who's supposed to hold it all together?…

Continue Reading Coping While Caring for Someone with Cystic Fibrosis

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