In an effort to learn more about neuromyelitis optica (NMO)—a chronic illness also known as Devic’s syndrome or Devic’s disease—I tuned into another YouTube video of a PhD. He'd been…
Welcome to the first of many posts related to Patient Worthy's Video Series! We had the pleasure of interviewing PW contributor Kathryn Ferguson, a mother and a wife, who has…
I have had two major life-altering “incidents” in my life. How each was treated was so amazingly different, it leaves me in a place where advocating for myself and others…
Some teenagers have trouble staying awake in class--but most of them have a fairly normal excuse: they stayed up too late. Then there are teens who actually do have a…
Happy New Year Patient Worthians! This week, we kicked off #NewYearNewYou. We want to hear how you are making 2016 the best year yet! We are also continuing our support for CysticLife's collaboration with the…
It’s happened to all of us. It’s Friday afternoon. You’re at the airport, waiting anxiously by the gate to catch the next flight out. It’s been far too many days…
Can you imagine being only 7years old and having painful, unexplained, and reoccurring swelling on all parts of your body? How scary it must be to have your face, feet, legs,…
If ever there was a “girl next door,” it’s Ashley Coleman, a beautiful, bright-eyed-blonde and very active young woman! She’s got the smile of a Homecoming Queen! Even though Ashley…
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Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.