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Daily Archives: March 7, 2016

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CRPS Teen Overcomes Her Pain in a Nete Way

CRPS Teen Overcomes Her Pain in a Nete Way

  • Post author:James Ernest Cassady
  • Post published:March 7, 2016
  • Post category:Complex Regional Pain Syndrome/Rare Disease

I once confessed in an article on this site that I hate dancing because I'm not particularly good at it. Well, now I have another confession: I'm also terrified of…

Continue Reading CRPS Teen Overcomes Her Pain in a Nete Way
How Did a Narcolepsy Video Absolutely Shock a Cynic?

How Did a Narcolepsy Video Absolutely Shock a Cynic?

  • Post author:Kiki Jones
  • Post published:March 7, 2016
  • Post category:Narcolepsy

Fine, I’ll be the first one to say it—I’m a cynic. Straight up. It’s a family trait so proudly established that when questioned by a very young Kiki about our…

Continue Reading How Did a Narcolepsy Video Absolutely Shock a Cynic?
This Cystic Fibrosis Mom’s Wish Proved To Be A Miracle

This Cystic Fibrosis Mom’s Wish Proved To Be A Miracle

  • Post author:James Ernest Cassady
  • Post published:March 7, 2016
  • Post category:Cystic Fibrosis/Rare Disease

"It's crazy that apathy can be allowed to cost so many lives" Dear Readers, How many of you are organ donors? How many of you had to pull out your…

Continue Reading This Cystic Fibrosis Mom’s Wish Proved To Be A Miracle
#MondayMotivation- Simplicity: A Weapon Against Complex Rare Disease Questions

#MondayMotivation- Simplicity: A Weapon Against Complex Rare Disease Questions

  • Post author:Patient Worthy Contributor
  • Post published:March 7, 2016
  • Post category:Rare Disease

Sometimes we look at our problems as if they were wrapped in a web of unintelligible contradictions and absurdity and we take it upon ourselves to unravel that web of…

Continue Reading #MondayMotivation- Simplicity: A Weapon Against Complex Rare Disease Questions
Soccer Legend Mia Hamm Kicks Aplastic Anemia Into Stratosphere

Soccer Legend Mia Hamm Kicks Aplastic Anemia Into Stratosphere

  • Post author:Alisha Stone
  • Post published:March 7, 2016
  • Post category:Aplastic anemia

Soccer star legend and two-time Olympic Gold Medalist, Mia Hamm, whose real name is Mariel Margaret Garciaparra, is rocking the aplastic anemia community by sharing her personal story to inspire…

Continue Reading Soccer Legend Mia Hamm Kicks Aplastic Anemia Into Stratosphere
3 maneras este vídeo te puede enseñar cómo abogar por el IP

3 maneras este vídeo te puede enseñar cómo abogar por el IP

  • Post author:Patient Worthy Contributor
  • Post published:March 7, 2016
  • Post category:Primary Immunodeficiencies/Rare Disease

He descubierto que a través de todo esto, mi hijo ha empezado a preguntar, '¿Cómo puedo ayudar? ¿Que puedo hacer?' En cierto modo, esas son las mismas cosas que le…

Continue Reading 3 maneras este vídeo te puede enseñar cómo abogar por el IP

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