Looking for a good, concise description of common variable immune deficiency (CVID)?
You could do a lot worse than to watch this video from the Children’s Hospital of Pittsburgh of UPMC. In it, the Hospital’s Bone Marrow Transplant Expert Paul Szabolcs, explains how a dysfunction in the B cells can compromise development in children, causing recurring infections and eventually, destruction of lung function and intestinal tissue. He also outlines possible treatment options for patients.
The Children’s Hospital of Pittsburgh has a full YouTube channel with videos providing information and personal stories in asthma care, heart health, and rare disease. The hospital’s Center for Rare Disease Therapy covers a range of conditions, including primary immunodeficiency conditions like CVID, Chronic Granulomatous Disease (CGD), and Severe Combined Immune Deficiency (SCID). Separate videos introduce the physicians and specialists working at the Center and some of the patients who’ve been treated there.
Even if you aren’t planning to take your child to the Children’s Hospital of Pittsburgh, take some time to explore their videos; you just might find something to inform and inspire you on your journey.
