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Daily Archives: April 21, 2016

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Have Behçet’s and Want to Blaze the Trail to New Treatment?
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Have Behçet’s and Want to Blaze the Trail to New Treatment?

  • Post author:Winnie Nash
  • Post published:April 21, 2016
  • Post category:Behçet's/Rare Disease/Timely

Behçet’s disease. If you’ve never heard of it, it’s a disease that causes blood vessel inflammation. If you have heard of it—or actually have Behçet’s—you’re probably well aware of the resulting…

Continue Reading Have Behçet’s and Want to Blaze the Trail to New Treatment?
Estas historias de AEH harán que desees ver un cambio

Estas historias de AEH harán que desees ver un cambio

  • Post author:Patient Worthy Contributor
  • Post published:April 21, 2016
  • Post category:HAE/Rare Disease

Hay algunas enfermedades locas en el mundo de hoy, y el angioedema hereditario, o AEH, es uno de ellos. Para ver los síntomas en la acción, usted puede tener que…

Continue Reading Estas historias de AEH harán que desees ver un cambio
The Eyes Can Tell a Story: Copper Rings and Sunflower Stars
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The Eyes Can Tell a Story: Copper Rings and Sunflower Stars

  • Post author:Kathy Devanny
  • Post published:April 21, 2016
  • Post category:Rare Disease/Wilson Disease

Wilson Disease: the rare, autosomal (meaning it occurs in both men and women), recessive (meaning that an individual must inherit one copy of the mutated allele from each parent to…

Continue Reading The Eyes Can Tell a Story: Copper Rings and Sunflower Stars
Find Zebra – Like WebMD, But for Rare Diseases

Find Zebra – Like WebMD, But for Rare Diseases

  • Post author:Patient Worthy Contributor
  • Post published:April 21, 2016
  • Post category:Rare Disease

Have you ever gone to WebMD's symptom checker for a simple pain in your stomach or a weird patch on your skin? I know I have, and more often than…

Continue Reading Find Zebra – Like WebMD, But for Rare Diseases
How to Come to Terms with Your Child’s Diagnosis

How to Come to Terms with Your Child’s Diagnosis

  • Post author:Patient Worthy Contributor
  • Post published:April 21, 2016
  • Post category:Primary Immunodeficiencies

You've been wondering for months about your child's random symptoms and pain. Nothing you ever knew about kids and growing up helped you understand what was going on. Even your doctor was…

Continue Reading How to Come to Terms with Your Child’s Diagnosis
3 Shocking Things Can Be Done to Ease Chronic Pain

3 Shocking Things Can Be Done to Ease Chronic Pain

  • Post author:Patient Worthy Contributor
  • Post published:April 21, 2016
  • Post category:Myasthenia Gravis

The human body is still a mystery in so many ways to doctors and scientists. Despite having more knowledge and research to draw from, there are still illnesses that confound researchers and…

Continue Reading 3 Shocking Things Can Be Done to Ease Chronic Pain
Pregnant with Myasthenia Gravis? No Need to Panic

Pregnant with Myasthenia Gravis? No Need to Panic

  • Post author:Patient Worthy Contributor
  • Post published:April 21, 2016
  • Post category:Myasthenia Gravis

Myasthenia gravis (MG) is not exactly a common disease, but it affects young adult women most, so the question of pregnancy matters a lot. If you're noticing any unusual breathing problems,…

Continue Reading Pregnant with Myasthenia Gravis? No Need to Panic

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