Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Monthly Archives: May 2016

  1. Home>
  2. 2016>
  3. May>
  4. Page 9
Meme Making Contest – Are YOU Worthy Enough? #PWMemeWeek

Meme Making Contest – Are YOU Worthy Enough? #PWMemeWeek

  • Post author:Patient Worthy Contributor
  • Post published:May 2, 2016
  • Post category:Rare Disease

IIIIIIIIITTSS.... MEEEEMEEEEE MAAAKING TIIIIIIIIIIIIIME! Remember that sneaky little quip I hid not so secretly into a 366 talking tip post a couple of weeks back? well the time has come…

Continue Reading Meme Making Contest – Are YOU Worthy Enough? #PWMemeWeek
What Do You Do if Your Baby Has CPSID?
Source: pixabay.com

What Do You Do if Your Baby Has CPSID?

  • Post author:Ronald Ledsen
  • Post published:May 2, 2016
  • Post category:Carbamoyl phosphate synthetase 1 deficiency/Rare Disease

Becoming a parent can be exciting and terrifying in nearly equal measures—along with the thrill, anticipation, and joy, there’s the fear of what could go wrong. Worrying about your child’s…

Continue Reading What Do You Do if Your Baby Has CPSID?
Supermoms and Other Myths
Pixabay

Supermoms and Other Myths

  • Post author:Patient Worthy Contributor
  • Post published:May 2, 2016
  • Post category:Dystonia/Rare Disease

God blessed my husband and me with two girls, seven and nine. They are my reasons for living and my reason for fighting cervical dystonia every day. My oldest has…

Continue Reading Supermoms and Other Myths
Scientists need to get on the same page on Lyme Disease

Scientists need to get on the same page on Lyme Disease

  • Post author:Patient Worthy Contributor
  • Post published:May 2, 2016
  • Post category:Lyme Disease

Continue Reading Scientists need to get on the same page on Lyme Disease
Welcome to Lyme Disease Awareness Month
Source: pixabay.com

Welcome to Lyme Disease Awareness Month

  • Post author:Patient Worthy Contributor
  • Post published:May 2, 2016
  • Post category:Lyme Disease/Rare Disease

May is Lyme Disease Awareness Month and like other awareness months, it's all about educating the medical community and the community at large. Lyme disease is one of, if not the…

Continue Reading Welcome to Lyme Disease Awareness Month
In the Voice of Arnold Schwarzenegger, “I HAVE A TUMAAA!”

In the Voice of Arnold Schwarzenegger, “I HAVE A TUMAAA!”

  • Post author:Patient Worthy Contributor
  • Post published:May 2, 2016
  • Post category:Cushing Disease/Rare Disease

We introduced Patient Worthy's newest and first Contributor living with Cushing's Disease in, On a Mission to be Fit and Fabulous, Meet Liz. If you are new to Liz's series about…

Continue Reading In the Voice of Arnold Schwarzenegger, “I HAVE A TUMAAA!”
7 maneras de buscar en línea para obtener información acerca de ICV

7 maneras de buscar en línea para obtener información acerca de ICV

  • Post author:Patient Worthy Contributor
  • Post published:May 2, 2016
  • Post category:CVID/Rare Disease

Inmunodeficiencia Común Variable o ICV, es una enfermedad rara que afecta entre 1 en 25.000 y 1 en 50.000 personas en el mundo. Búsqueda de información sobre la condición crónica…

Continue Reading 7 maneras de buscar en línea para obtener información acerca de ICV
Meme Motivation – Lyme is no walk in the park

Meme Motivation – Lyme is no walk in the park

  • Post author:Patient Worthy Contributor
  • Post published:May 2, 2016
  • Post category:Lyme Disease

Continue Reading Meme Motivation – Lyme is no walk in the park
Does Myasthenia Gravis Make YOU A Special Little Snowflake?

Does Myasthenia Gravis Make YOU A Special Little Snowflake?

  • Post author:Lady Kehveen Abernathy
  • Post published:May 1, 2016
  • Post category:Myasthenia Gravis

Myasthenia Gravis (MG) can make it hard for its sufferers to function normally whatsoever, as is the case for Cathy Liner, a woman living in Salem, North Carolina. Cathy has dedicated her life to…

Continue Reading Does Myasthenia Gravis Make YOU A Special Little Snowflake?
  • Go to the previous page
  • 1
  • …
  • 6
  • 7
  • 8
  • 9

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info