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Daily Archives: October 13, 2016

Home » Archives for October 13, 2016
What Is the Sad World of Opioid Addiction?
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What Is the Sad World of Opioid Addiction?

  • Post author:Erica Zahn
  • Post published:October 13, 2016
  • Post category:Complex Regional Pain Syndrome

It seems like every day I read about another death caused by opioid addiction. When the US government attempted to stem the tide of opioid abuse by restricting medical professionals' ability…

Continue Reading What Is the Sad World of Opioid Addiction?
How to Rise by Lifting Others with Dystonia
[Source: pixabay.com]

How to Rise by Lifting Others with Dystonia

  • Post author:Sabina Kennedy
  • Post published:October 13, 2016
  • Post category:Dystonia/Rare Disease

As someone who was raised to have good manners, you can bet your bottom dollar that my own children do too. So I was both ashamed and proud of a…

Continue Reading How to Rise by Lifting Others with Dystonia
What Has My Friend with Sarcoidosis Taught Me? I Want You To Know.
Pixabay

What Has My Friend with Sarcoidosis Taught Me? I Want You To Know.

  • Post author:Erica Zahn
  • Post published:October 13, 2016
  • Post category:Rare Disease/Sarcoidosis

Sarcoidosis is one of the rare diseases that makes me angry. A good friend of mine has it and it has rendered a once vibrant, active woman into one who…

Continue Reading What Has My Friend with Sarcoidosis Taught Me? I Want You To Know.
How to Use Your Creativity to Support Lyme Disease
Source: pixabay.com

How to Use Your Creativity to Support Lyme Disease

  • Post author:Sabina Kennedy
  • Post published:October 13, 2016
  • Post category:Lyme Disease/Rare Disease

When I think of creativity and crafty talent, Etsy is one of my first fleeting thoughts. I view all the shops on the website, and wonder, “How I wish I…

Continue Reading How to Use Your Creativity to Support Lyme Disease
Why You Need to Exercise Even When You’re Fatigued
https://pixabay.com/en/bed-dog-animals-dogs-pets-relax-1284238/

Why You Need to Exercise Even When You’re Fatigued

  • Post author:Farrah Fontaine
  • Post published:October 13, 2016
  • Post category:POTS/Sjogren's Syndrome

When you have an autoimmune disease like Sjogren's and you've heard your doctor tell you for the umpteenth time that you really need to exercise, you kinda just want to…

Continue Reading Why You Need to Exercise Even When You’re Fatigued
Esta Enfermedad engañosa está engañando a médicos y matando a pacientes

Esta Enfermedad engañosa está engañando a médicos y matando a pacientes

  • Post author:Patient Worthy Contributor
  • Post published:October 13, 2016
  • Post category:HAE/Rare Disease

Al igual que muchos con angioedema hereditario, esta familia no sabía que la enfermedad estaba afectando a varios de sus miembros hasta que uno de los miembros, Ken, fue diagnosticado…

Continue Reading Esta Enfermedad engañosa está engañando a médicos y matando a pacientes

OF INTEREST


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X-Linked Hypophosphatemia: Unnderstanding this Hereditary, Progressive, and Lifelong Condition


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Catalyst’s LEMS Aware Podcast Helps Connect Patients

Patient Stories

STUDY OF THE WEEK

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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RARE CLASSROOM

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most mysterious diseases and conditions. This series is an opportunity to learn the basics about some of the diseases that almost no one hears much about.

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