At this time last year, I was 89 lbs and at the beginning stages of recovery from a year of IV and oral antibiotics for the treatment of Lyme disease.…
"Every moment on this earth is an extraordinary, destiny defining gift from God." –Billy Cox Happy Thanksgiving Patient Worthians!
Patient Worthy is wishing the very best Thanksgiving to our U.S. readers. Even if your meal isn't traditional, or is accompanied by a regiment of medications, we hope that you…
Having a rare disease is exhausting on so many levels. The pain, the lack of sleep, the lack of money, the doctors’ appointments… Where is the fun and the spontaneity?…
Recently I was asked to write a piece about what I am thankful for this Thanksgiving. My first reaction was, "Oh God, Thanksgiving is actually here again?" I don't have…
"As Long as you're still breathing, There's still a purpose for your life." - Billy Cox I find these words very inspiring and comforting. Even when you question why you…
Have you been looking for a treatment for factor XIII (FXIII), or fibrin stabilizing factor, deficiency? You may be among the estimated one in 3 million people suffering with lifelong…
Si las enfermedades raras estaban participando en un concurso de belleza, donde la "belleza" significa "poco conocido", "mal entendido", y "casi imposible de diagnosticar" -Ehlers-Danlos (EDS) sería a la altura…
Para muchos, como yo, las vacaciones pueden ser agridulce, ya veces duro. Todos los días, me siento agradecido por las personas que forman parte de mi vida. A veces, sin…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
