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Daily Archives: December 6, 2016

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Take a Minute to Change a Life

Take a Minute to Change a Life

  • Post author:Kathy Devanny
  • Post published:December 6, 2016
  • Post category:Gastroschisis/Rare Disease/Timely

Baby Isabella (pictured above) is in serious need of a hospital transfer. Her condition Gastroschisis, is rare. She needs a facility with people who have the most experience caring for…

Continue Reading Take a Minute to Change a Life
One Cute Story and Some Important Juvenile Idiopathic Arthritis Facts
Source: Pexels.com

One Cute Story and Some Important Juvenile Idiopathic Arthritis Facts

  • Post author:Erica Zahn
  • Post published:December 6, 2016
  • Post category:Juvenile idiopathic arthritis/Rare Disease

I used to work with a woman who had a houseful of kids, so she always had an interesting story to tell. One story that stands out to me is…

Continue Reading One Cute Story and Some Important Juvenile Idiopathic Arthritis Facts
Cystic Fibrosis Met Its Match with a Woman on Facebook
Source: Pexels.com

Cystic Fibrosis Met Its Match with a Woman on Facebook

  • Post author:PW Blogger
  • Post published:December 6, 2016
  • Post category:Cystic Fibrosis/Rare Disease

How many of us are guilty of spending countless hours just scrolling through Facebook? I know I'm guilty of that. Just checking out pictures and watching videos. It's great to see…

Continue Reading Cystic Fibrosis Met Its Match with a Woman on Facebook
The Simplest Way to Make the Best of NASH
Source: www.pixabay.com

The Simplest Way to Make the Best of NASH

  • Post author:Sabina Kennedy
  • Post published:December 6, 2016
  • Post category:Nonalcoholic steatohepatitis/Rare Disease

Lately, I haven’t been particularly mindful of hope. In truth, sometimes I feel like it’s more suited to children’s fairy tales. But the more I’ve turned the issue around in…

Continue Reading The Simplest Way to Make the Best of NASH
Massachusetts Declares a War on Lyme
[Source: pixabay.com]

Massachusetts Declares a War on Lyme

  • Post author:Erica Zahn
  • Post published:December 6, 2016
  • Post category:Lyme Disease

Growing up in the New York City area, the fear of ticks was drummed into me. The tiny little buggers could hitchhike home with us tucked in the waistband of…

Continue Reading Massachusetts Declares a War on Lyme
11 doctores que deberias de visitar cuando tienes la enfermedad de Bechet’s
source: pixabay.com

11 doctores que deberias de visitar cuando tienes la enfermedad de Bechet’s

  • Post author:Patient Worthy Contributor
  • Post published:December 6, 2016
  • Post category:Behçet's/Rare Disease

Una de las partes frustrantes de tener la enfermedad de Behçet es que puede afectar a muchas partes diferentes del cuerpo. Y a diferencia de otras condiciones que sólo pueden…

Continue Reading 11 doctores que deberias de visitar cuando tienes la enfermedad de Bechet’s
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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