How many of us are guilty of spending countless hours just scrolling through Facebook?
I know I’m guilty of that. Just checking out pictures and watching videos.
It’s great to see someone instead using Facebook to change their life and the lives of everyone else around them.
Meet a young woman named Emily who is changing the world of cystic fibrosis with Facebook.
Cystic fibrosis is a genetic disease that affects the lungs and the digestive system. There is no cure for this disease and Emily has a rare mutation. The average life span of her particular type is 35-37 years old. She was diagnosed at six weeks of age and is now 31 years old.
Emily’s Entourage has raised over 2 million dollars for cystic fibrosis research.
They are wanting research to be focused on Emily’s mutation. Her Entourage feels that research on her particular mutation will open several doors to gain answers about other genetic diseases.
Emily’s parents vowed that she would have a fulfilling life. She graduated from the University of Pennsylvania, and then later returned and graduated with a Master’s in bioethics.
Emily made all of this happen while take 30 pills and injections everyday.
She was named Champion of Change from the White House and also featured in Time, People and Yahoo Health.
I think it is amazing that this young woman has dedicated her life and time to find a cure for cystic fibrosis. She has worked hard to get attention on her specific mutation and I think that is a true example of hard work and dedication.
Click here to find out ways that you can help Emily’s Entourage!
