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Daily Archives: January 20, 2017

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Editor’s Choice: Perseverance in the Face of Rare Disease

Editor’s Choice: Perseverance in the Face of Rare Disease

  • Post author:Patient Worthy Contributor
  • Post published:January 20, 2017
  • Post category:Complex Regional Pain Syndrome/Cushing Disease/Cystinosis/HAE/Rare Disease

Happy Friday Patient Worthians! Do you wish you can take a day off from your rare disease? What about when it seems like it's getting to be too much and…

Continue Reading Editor’s Choice: Perseverance in the Face of Rare Disease
Wilson Disease: Excess Copper Can Wreak Havoc on the Human Body
Source: www.pixabay.com

Wilson Disease: Excess Copper Can Wreak Havoc on the Human Body

  • Post author:Erica Zahn
  • Post published:January 20, 2017
  • Post category:Rare Disease/Wilson Disease

Wilson disease is one of those conditions that creeps up on the patient. The disease causes the body to be unable to properly metabolize copper, which as a result, builds…

Continue Reading Wilson Disease: Excess Copper Can Wreak Havoc on the Human Body
Why is Central Precocious Puberty on the Rise?
Source: pixabay.com

Why is Central Precocious Puberty on the Rise?

  • Post author:Erica Zahn
  • Post published:January 20, 2017
  • Post category:Central precocious puberty/Rare Disease

Central precocious puberty used to be much rarer than it is today. Doctors are seeing more and more patients who begin to develop too early, and they can't figure out…

Continue Reading Why is Central Precocious Puberty on the Rise?
Narcolepsy: What You Need to Know to Protect Your Family

Narcolepsy: What You Need to Know to Protect Your Family

  • Post author:Donald Blake
  • Post published:January 20, 2017
  • Post category:Narcolepsy/Rare Disease

I’ve been known to doze off occasionally at odd times. My dad does this and so did my grandfather. And I know that's one of the symptoms of narcolepsy. My…

Continue Reading Narcolepsy: What You Need to Know to Protect Your Family
The Best Way to Get Educated About CAPS
[Source: pixabay.com]

The Best Way to Get Educated About CAPS

  • Post author:Farrah Fontaine
  • Post published:January 20, 2017
  • Post category:Neonatal onset multisystem inflammatory disease/Rare Disease

If you want to learn more about cryopyrin-associated periodic syndromes (CAPS), but don't know where to go, have no fear! We have found the perfect place for you! Systemic Autoinflammatory…

Continue Reading The Best Way to Get Educated About CAPS
brazos grandes, una enfermedad crónica… señoritas, ¿qué más quieren?
Source: Pexels.com

brazos grandes, una enfermedad crónica… señoritas, ¿qué más quieren?

  • Post author:Patient Worthy Contributor
  • Post published:January 20, 2017
  • Post category:Ankylosing Spondylitis/Rare Disease

Cuando se le diagnostica la espondilitis anquilosante (EA), la última cosa que quiere hacer es trabajar a cabo. A menos que, por supuesto, usted es Nate Lewnes. Nate ya no…

Continue Reading brazos grandes, una enfermedad crónica… señoritas, ¿qué más quieren?

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