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Daily Archives: March 6, 2017

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What Do Parkinson’s, Red Hair and Melanoma Have in Common?

What Do Parkinson’s, Red Hair and Melanoma Have in Common?

  • Post author:Patient Worthy Contributor
  • Post published:March 6, 2017
  • Post category:Parkinson's Disease

Researchers at Massachusetts General Hospital (MGH) have found that mice with MC1R, the gene that is responsible for red hair, are more susceptible to toxins that are damaging to neurons…

Continue Reading What Do Parkinson’s, Red Hair and Melanoma Have in Common?
Vrrroom Into May with Central VA’s Unity Ride for Sickle Cell Disease
Source: Pixabay

Vrrroom Into May with Central VA’s Unity Ride for Sickle Cell Disease

  • Post author:Nia
  • Post published:March 6, 2017
  • Post category:Rare Disease/Sickle cell anemia/Timely

From now until May, 8th, a local television news station in Central Virginia, will be leading the community in raising funds for sickle cell disease (SCD). A part of the…

Continue Reading Vrrroom Into May with Central VA’s Unity Ride for Sickle Cell Disease
My Dog has Narcolpesy! And 3 Other Facts About a Leading Researcher
[Source: pixabay.com]

My Dog has Narcolpesy! And 3 Other Facts About a Leading Researcher

  • Post author:Alexa Lee
  • Post published:March 6, 2017
  • Post category:Narcolepsy/Rare Disease

It goes without saying that sans research, medical science would be stuck in the Dark Ages. I doubt any of us wishes bloodletting for narcolepsy--or any reason!--was still a thing.…

Continue Reading My Dog has Narcolpesy! And 3 Other Facts About a Leading Researcher
Your Kidneys Deserve a Round of Applause For Their Hard Work
Source: www.pixabay.com

Your Kidneys Deserve a Round of Applause For Their Hard Work

  • Post author:Erica Zahn
  • Post published:March 6, 2017
  • Post category:Glomerulonephritis/Rare Disease

Our kidneys do a lot of work keeping the body healthy. They filter fluids, electrolytes, toxins, and waste the body can't use. Inside the kidneys are blood vessels that help…

Continue Reading Your Kidneys Deserve a Round of Applause For Their Hard Work
Your Jaw Will Drop Over This Mom’s Empowering Fight Against Parkinson’s
[Source: pixabay.com]

Your Jaw Will Drop Over This Mom’s Empowering Fight Against Parkinson’s

  • Post author:Alisha Stone
  • Post published:March 6, 2017
  • Post category:Parkinson's Disease

I thought I’d had a bad day today, but quickly changed my mind after reading about a part-time teacher, married mother of four kids who was only 37 years old…

Continue Reading Your Jaw Will Drop Over This Mom’s Empowering Fight Against Parkinson’s
How to Improve the Rare Disease Treatment Pricing Problem
Source: pixabay

How to Improve the Rare Disease Treatment Pricing Problem

  • Post author:Patient Worthy Contributor
  • Post published:March 6, 2017
  • Post category:Rare Disease

During Rare Disease Week on Capital Hill, on behalf of Lyme and dysautonomia, in addition to ALL rare disease, I lobbied my congressman to support the newly introduced (kind of) OPEN…

Continue Reading How to Improve the Rare Disease Treatment Pricing Problem
Cómo 2 segundos puede salvar la vida de un bebé

Cómo 2 segundos puede salvar la vida de un bebé

  • Post author:Jean Martell
  • Post published:March 6, 2017
  • Post category:Español/Primary Immunodeficiencies/Rare Disease

  Doctor, por favor revise la sangre de mi bebé! La IDF alienta a los funcionarios estatales del estado de Louisiana a firmar en rutinas de detección de recién nacidos…

Continue Reading Cómo 2 segundos puede salvar la vida de un bebé

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