Editor’s Choice: New MS Drug Approved, Narcolepsy Realities and Building a CF Team

Welcome back Patient Worthians!

This week we have some exciting news for the MS community. Additionally, we have some great tips on how to build your CF dream team.

Also, we have and interesting take on narcolepsy. Lastly, this artist turns facial dystonia into stunning head pieces.

So sit back and enjoy this week’s Editor’s Choice!




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Ocrevus for Multiple Sclerosis Approved by FDA

MS can be painful, debilitating and incredibly tiring.

Well, now we have a new option for the most common form of MS, in addition to a very aggressive form of MS. Check it out here.

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How to Build a CF Care Team That Rocks

CF, like other chronic rare diseases, takes a lot of effort to manage so that improved quality and longevity of life is obtained.

Read here to figure out some ways to disperse that effort among critical team members.

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Narcolepsy is No Slumber Party

Being in college is difficult enough– managing tough classes, extracurricular activities, friends and likely, a job.

Now imagine doing all of that with narcolepsy. Read more here.

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Artist Turns His Experience with Facial Dystonia Into Stunning Works of Art

Turning your rare disease into something good is incredibly hard.

Turning it into something beautiful, is incredible!

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