How One 8-Year-Old Doesn’t Let SCD Define Him

Our children bring us so much laughter and joy. Spending lots of quality time with our kids is proven to be good therapy; they benefit from wholesome interaction with their family. And for one set of parents from North Carolina, Lucas and Aline, their dedication to the care of their son Caesar, living with sickle cell anemia makes all the difference in his health.

The term sickle cell disease (SCD) describes a group of inherited red blood cell disorders. Cells in tissues need a steady supply of oxygen to work well. Sickle-shaped cells are not flexible and can stick to vessel walls, causing a blockage that slows or stops the flow of blood. When this happens, oxygen can’t reach nearby tissues.

But, Caesar, the little 8-year-old boy from North Carolina, doesn’t let SCD define him—his inspiring story is a must-read.

Children say and do hilarious things. Often their perspective helps us to see the world in a different light.

A colleague at work shared one of those classic lines that her 2-year-old came up with. She had just made caramelized popcorn as a treat for him. He looked at them, puzzled, and then announced, “I’m not eating them, they’re not in the shape of elephants!”

With that, another mama chipped in with her story. While on the train over the weekend, the family members were looking at some graffiti scrawled on the floor of the carriage. Her bright four-year-old commented, “Mommy, it’s good that they can spell their name right, but they should really practice on paper, shouldn’t they?”

Kids say and do the darndest things. Even more, they challenge us to get our priorities in life in order. As parents and caregivers, we learn to become more sympathetic human beings when we learn to put our young ones before ourselves and our own pursuits.


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