Editor’s Choice: When Being a Rare Disease Patient = Being a Fighter

WHEW! That week was short, wasn’t it?

We hope you had an awesome Independence Day Weekend in the US, and Canada Day in our neighbors to the north.

This week, we have a guttate psoriasis story from a PW writer. We also have news on a glioblastoma drug, an IPF resource and coverage on someone touched by Waldenstrom Macroglobulinemia.

So sit back and relax, and check out this week’s Editor’s Choice.

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This Drug is Armed and Ready to Fight Pediatric Brain Tumors

There is hope for pediatric brain tumors on the horizon.

Read more here.

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Complicated Feelings with Waldenstrom Macroglobulinemia

This woman’s mother was diagnosed with a devastating rare disease, which changed her entire outlook on life.

Read more here.

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IPF Patients, Caregivers! Use This Free Online Educational Program!

Care for rare disease is so expensive– but we found a free tool for you!

Check it out here.

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Fighting Guttate Psoriasis From the Inside, Out

PW writer Sarah details how she is fighting her rare form of psoriasis!

Read more here.

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Do you have a rare disease experience of your own? Share with us here.

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