Cystic Fibrosis Causes This Mermaid to Struggle on Land

Mermaids have unique breathing concerns while they’re on land. In Disney’s “The Little Mermaid,” a young mermaid princess trades her voice for an opportunity to live on the land and capture the heart of a handsome prince—a fairy tale loved by children and adults of all ages.

In Scotland, there is a real-life mermaid who is in desperate need. Not to live out a fairy tale, but to live life as a mermaid on land. She is battling a rare respiratory disease called cystic fibrosis (CF) that is threatening to silence her voice, and she is counting on the kindness of strangers to help her live out a simple dream through an organ donation.

Young children love to play—run, skip, dance, sing. It’s the joy of every parent to hear them busy running around and enjoying the fresh air. CF makes it very difficult for children to get a full breath or to exercise, depending on the severity. Stairs can be a real challenge.

When day-to-day activities are difficult, parents will rise to the occasion to push, pray, and seek a solution. For Diane Walker, it means hoping the next phone call will bring a miracle. Eight-year-old Ruby needs a lung transplant.

Ruby’s CF impacts everything she does, from singing a song as a mermaid in her school play to being able to ride her bike. CF requires her to be tethered to an oxygen tank and limits her ability to be as active as she wants to be.
Both Ruby and her mom are working together to raise awareness of the importance of organ donor registrations. Their sincere hope is the next call will bring an organ donation to help this little mermaid find her voice and provide her with the gift of a lifetime.

Are you increasing awareness for a rare disease? Let us know about your experience today!
To learn more about CF, check out our partners at CysticLife and Strawfie Challenge.

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