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Daily Archives: August 8, 2017

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The Double-Whammy of Mental Illness and Tardive Dyskinesia Just Got a Little Easier
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The Double-Whammy of Mental Illness and Tardive Dyskinesia Just Got a Little Easier

  • Post author:Ronald Ledsen
  • Post published:August 8, 2017
  • Post category:Rare Disease/Tardive Dyskinesia

So I don’t think it will surprise anyone to learn that people living with mental illnesses like schizophrenia or bipolar disorder have to put up with a huge ration of…

Continue Reading The Double-Whammy of Mental Illness and Tardive Dyskinesia Just Got a Little Easier
Huge Childhood Cancer Study Now Underway
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Huge Childhood Cancer Study Now Underway

  • Post author:Sarah Lau
  • Post published:August 8, 2017
  • Post category:Mantle Cell Lymphoma/Marginal Zone Lymphoma/Neuroblastoma/Rare Disease/Soft Tissue Sarcoma

The Children’s Oncology Group (COG) and the National Cancer Institute (NCI) and have begun collaborating on a new project, to be known as the Pediatric Molecular Analysis for Therapy Choice…

Continue Reading Huge Childhood Cancer Study Now Underway
Can This Household Spice Help Kill Cancer Cells?
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Can This Household Spice Help Kill Cancer Cells?

  • Post author:Sarah Lau
  • Post published:August 8, 2017
  • Post category:Neuroblastoma/Rare Disease

Neuroblastoma, though rare, is the most common type of cancer in children who are five years old or younger. This cancer targets the immature nerve cells in the nerve tissue…

Continue Reading Can This Household Spice Help Kill Cancer Cells?
Lab Results Prove Engineered Organs May Become a Reality for SBS Patients
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Lab Results Prove Engineered Organs May Become a Reality for SBS Patients

  • Post author:Sarah Lau
  • Post published:August 8, 2017
  • Post category:Rare Disease/Short bowel syndrome

Tissue engineering has a relatively easy concept behind it. First, a patient’s stem cells are grown in the laboratory. Then, they are added to a scaffold material. And ta da!…

Continue Reading Lab Results Prove Engineered Organs May Become a Reality for SBS Patients
Support a Quest Across the 7 Seas for Rare Disease Awareness!
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Support a Quest Across the 7 Seas for Rare Disease Awareness!

  • Post author:Patient Worthy Contributor
  • Post published:August 8, 2017
  • Post category:Adrenoleukodystrophy/Rare Disease

Jon Milne is on a quest to race across the seven seas to help raise awareness of rare disease! Jon has always been a keen sportsman, aged 30 he had…

Continue Reading Support a Quest Across the 7 Seas for Rare Disease Awareness!
You Won’t Want to Miss This Hallmark Rare Disease Event!

You Won’t Want to Miss This Hallmark Rare Disease Event!

  • Post author:Sarah Lau
  • Post published:August 8, 2017
  • Post category:Rare Disease

Global Genes is hosting its 6th Annual RARE Patient Advocacy Summit for the rare disease community! Here's all you need to know about it, and why you won't want to miss it:…

Continue Reading You Won’t Want to Miss This Hallmark Rare Disease Event!
Holy Mountain Became Sacred to Team of People with Multiple Myeloma
[Source: pixabay.com]

Holy Mountain Became Sacred to Team of People with Multiple Myeloma

  • Post author:Al Pendleton
  • Post published:August 8, 2017
  • Post category:Multiple Myeloma

Sometimes, all it takes to succeed is knowing that someone is depending on you. For example, numerous studies have shown that there is better quality of life for elderly people…

Continue Reading Holy Mountain Became Sacred to Team of People with Multiple Myeloma
Bathroom Scales Handle Weighty Issues of the Heart
[Source: pixabay.com]

Bathroom Scales Handle Weighty Issues of the Heart

  • Post author:Chloe Easterbrook
  • Post published:August 8, 2017
  • Post category:Hyperkalemia/Rare Disease

It started out harmlessly enough—a Greatest Loser- type competition between co-workers. Everyone who wanted to participate put in $10, weigh-ins would be weekly, and the person who lost the most…

Continue Reading Bathroom Scales Handle Weighty Issues of the Heart
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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