Earlier this month, The Lancet Neurology published results from its PATH study (Polyneuropathy And Treatment with Hizentra), which showed efficacy in treating people with chronic inflammatory demyelinating polyneuropathy (CIDP). Great news and hope…
It’s a fact. Lifestyle and dietary changes are an important part of the formula to help lower “bad” cholesterol numbers. Whether you add more heart-healthy foods, healthier fats, or whey…
Big news for those with hemophilia! On Thursday, the FDA approved Hemlibra (manufactured by Genentech), a weekly self-injection for hemophilia A patients who have developed resistance to standard medicines for preventing…
Bleach baths. Hairbrushes. Scratching at skin lesions. Such is daily life when trying to find relief for the itching of severe atopic dermatitis (AD)--commonly called eczema. Now, these challenges are…
Jane Hamilton, a student at Century High School, Minnesota, has Tourette Syndrome, which is a disorder of the nervous system that can cause involuntary vocalizations and movements, which are commonly known…
When something in our computers doesn’t work or has a defect, we download a “patch” from the manufacturer, and call it repaired. With ongoing scientific research and development, the practice…
“It’s all in your head.” I dare say these are words that many people living with a rare disease, including dystonia, have heard. It’s absolutely unfair, aggravating, heartbreaking, maddening. I…
Vinmec, a healthcare facility in Vietnam made bronchopulmonary dysplasia (BPD) history. They successfully treated BDP using a method that had never been tried before: the stem cell transplant. The procedure occurred…
Children who like to dance are easy to identify. You’ll see them tapping their toes to pop songs, moving to the tunes on a television show or, in my case,…
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