Editor’s Choice: New Year, New Treatments

Happy New Years, Patient Worthians!

New year, new you… new treatment news? This week, we have an article about a molecule that could change the way we treat cystic fibrosis. We also have a thymus-transplant success story about a baby girl with DiGeorge syndrome who made it home for Christmas, in addition to an uplifting campaign started by a boy with LEOPARD syndrome, who takes fundraising for a cure into his own hands. Finally, a family who seeks justice over the death of a man with HHT, who died in prison.

Sit back and enjoy this week’s Editor’s Choice.
This New Discovery Could Improve Your Cystic Fibrosis Treatment

New research on molecules called quorum-sensing inhibitors may have big implications for people who battle CF.

Read all about it here.

Baby Girl from Michigan Receives Rare Treatment for Complete DiGeorge Syndrome

A baby spent most of her first year of life in the hospital. Finally, she gets to go home.

Read more about the story here.

6-Year-Old Boy with LEOPARD Syndrome Launches Christmas Campaign to Raise Awareness

When a young boy is diagnosed with a rare genetic disease, he takes initiative and uses the internet to help find a cure.

Read about his story here.

Family of 27-year-old Inmate with Osler-Weber-Rendu Disease Sues Correctional Facility in Florida for Wrongful Death

The family of an inmate who died in a correctional facility believes that his death could have been prevented had the facility taken his rare condition seriously.

Read the story here.

Do you have a rare disease experience of your own? Share with us here.

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