WASHINGTON, D.C. & SAN DIEGO — Children’s National Health System and Retrophin, Inc. (NASDAQ: RTRX) are pleased to announce the creation of the Retrophin Rare Disease Network at Children’s National.…
Baseball pitcher Tyson Ross recently signed to a Minor League contract with the San Diego Padres. In the past, Ross pitched for the Padres from 2013-2016. Now thirty years old,…
Every Christmas, Ray Sherbourne takes on the role of old Saint Nick, and he even has the authentic white beard to prove it, as originally reported in The Landmark. After…
Batu Biologics just raised $1.3 million in order to continue funding the development of ValloVax, an immunotherapy treatment for cancer tumors. The crowdfunding project was started in May 2017. Initially,…
When you are going through the daily struggles of living with a rare disease, you feel alone. It is hard to accept the support from family and friends because they…
The Cystinosis Research Network (CRN) is offering scholarships to prospective college students who have been impacted by the condition. The organization offers two different scholarships, one for a student that…
Anna Gordon from West Virginia doesn't let her Friedreich ataxia define her, and she encourages anyone with a rare disease to not let it define them either, reported Public Broadcasting.…
I am always incredibly inspired by the people that don’t allow their rare diseases to prevent them from doing what they love. Whether it’s been Charity Tillemann-Dick with opera or Olivia…
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