Have You Heard of this Government Office Coordinating Rare Disease Research?
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Have You Heard of this Government Office Coordinating Rare Disease Research?

According to a story from Charcot Marie Tooth News, a small subdivision of the National Institutes of Health (NIH) is leaning into its role to assist with research into rare…

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This Man is Speaking Out About What it’s Really Like to Live With ALD

Michael Conway, 51, was diagnosed with Adrenoleukodystrophy (ALD) two years ago. Since then, he has been raising awareness for the rare and potentially life-shortening condition. He wants to let people…

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Experimental Tourette Syndrome Treatment Displays Potential in Trials So Far
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Experimental Tourette Syndrome Treatment Displays Potential in Trials So Far

According to a story from PR Newswire, the pharmaceutical company Therapix Biosciences recently announced the results of a Phase IIa study for its drug candidate THX-110. The therapy is indicated…

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Spondyloarthritis Presents Differently in Kids
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Spondyloarthritis Presents Differently in Kids

According to a story from medpagetoday.com, researchers are beginning to realize that symptoms of pediatric spondyloarthritis present themselves in a distinct way when compared to the symptoms that are experienced…

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Voice Technology and Cryptocurrency Changing Charcot-Marie-Tooth Disease Research
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Voice Technology and Cryptocurrency Changing Charcot-Marie-Tooth Disease Research

Collaboration often leads to greater success. Two advocacy groups, the Hereditary Neuropathy Foundation and True Reply have done just that to benefit patients with Charcot-Marie-Tooth disease. Their combined efforts focus…

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Combination Treatment is Dramatically Improving Outcomes for Mantle Cell Lymphoma Patients
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Combination Treatment is Dramatically Improving Outcomes for Mantle Cell Lymphoma Patients

According to a story from adc.net.au, an innovative new cancer treatment regimen is responsible for doubling survival rates for patients with certain types of rare, difficult-to-treat blood cancers. This combination…

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Update on Phase 2 Clinical Trial for a Drug to Treat CKD in Alport Syndrome Patients has Been Released
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Update on Phase 2 Clinical Trial for a Drug to Treat CKD in Alport Syndrome Patients has Been Released

A drug being developed to treat chronic kidney disease in Alport syndrome is showing promising results in patients in an on-going phase 2 clinical trial. Patients have shown an increase…

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