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Daily Archives: June 27, 2018

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A Doctor With Castleman Disease is in a Race Against Time to Save His Own Life
Engin_Akyurt / Pixabay

A Doctor With Castleman Disease is in a Race Against Time to Save His Own Life

  • Post author:James Moore
  • Post published:June 27, 2018
  • Post category:Castleman Disease/Rare Disease

According to a story from today.com, Dr. David Fajgenbaum was first diagnosed with Castleman disease in 2010. His first encounter with the illness was terrifying. He was confined to the…

Continue Reading A Doctor With Castleman Disease is in a Race Against Time to Save His Own Life
How Rapid Autopsy Could Change What We Know About Rare Disease

How Rapid Autopsy Could Change What We Know About Rare Disease

  • Post author:Samuel Sachs
  • Post published:June 27, 2018
  • Post category:Multiple Sclerosis/Pancreatic Cancer/Rare Disease

Understanding diseases and the mechanisms behind them is a crucial step towards developing treatment. Many times, however, it's difficult to accomplish this due to the rarity of a condition, or…

Continue Reading How Rapid Autopsy Could Change What We Know About Rare Disease
This Mom will Stop at Nothing to Cure MSD
Source: www.pixabay.com

This Mom will Stop at Nothing to Cure MSD

  • Post author:Rebekah
  • Post published:June 27, 2018
  • Post category:Multiple Sulfatase Deficiency/Rare Disease

I had the chance to chat with Amber Olsen, the founder of The United MSD Foundation, and mother to Willow. This is their story. Willow had been a seemingly healthy…

Continue Reading This Mom will Stop at Nothing to Cure MSD
Medical Equipment We Didn’t Know Existed Before We Entered the Rare Disease World
hioahelsefag / Pixabay

Medical Equipment We Didn’t Know Existed Before We Entered the Rare Disease World

  • Post author:Patient Worthy Contributor
  • Post published:June 27, 2018
  • Post category:Rare Disease

Visit any pediatric ward in a hospital or medical center and you will see many pieces of medical equipment, but visit the OT and PT departments and you are in…

Continue Reading Medical Equipment We Didn’t Know Existed Before We Entered the Rare Disease World
This IPF Drug Could Also Treat Heart Attacks
Source: Pixabay

This IPF Drug Could Also Treat Heart Attacks

  • Post author:Athena Lee
  • Post published:June 27, 2018
  • Post category:Idiopathic Pulmonary Fibrosis

According to EurekAlert! Science News, researchers have pinpointed the certain immune cell that further inflames a heart attack. The immune cell, however, comes with good intentions of trying to fix…

Continue Reading This IPF Drug Could Also Treat Heart Attacks
Circadian Clocks and How They Relate to Cancer Treatment
Source: Pixabay

Circadian Clocks and How They Relate to Cancer Treatment

  • Post author:Athena Lee
  • Post published:June 27, 2018
  • Post category:Ovarian Cancer/Testicular Cancer

According to Sleep Review, researchers at the University of North Carolina School of Medicine are studying DNA repair after damage from anti-cancer drugs as well as DNA repair and how…

Continue Reading Circadian Clocks and How They Relate to Cancer Treatment
Congress Approves DoD Budget with Millions for Mesothelioma Research
image4you / Pixabay

Congress Approves DoD Budget with Millions for Mesothelioma Research

  • Post author:Samuel Sachs
  • Post published:June 27, 2018
  • Post category:Mesothelioma

In April, Congress approved the 2018 budget for the Department of Defense (DoD). Included in the DoD is a sizable portion dedicated to the investigation and development of new and…

Continue Reading Congress Approves DoD Budget with Millions for Mesothelioma Research
Parents Faced With Tough Decisions for Aging Children With Disabilities
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Parents Faced With Tough Decisions for Aging Children With Disabilities

  • Post author:Octavia Walker
  • Post published:June 27, 2018
  • Post category:Cerebral Palsy

Although having a child with disabilities is no doubt stressful, the stress and worry does not necessarily lessen as the child grows older. As children with disabilities age towards adulthood…

Continue Reading Parents Faced With Tough Decisions for Aging Children With Disabilities
A Phase II Trial for a Personalized Ovarian Cancer ‘Vaccine’ Has Begun
pandoraferrari / Pixabay

A Phase II Trial for a Personalized Ovarian Cancer ‘Vaccine’ Has Begun

  • Post author:James Moore
  • Post published:June 27, 2018
  • Post category:Glioblastoma/Ovarian Cancer

According to a story from PR Newswire, the drug development company AIVITA Biomedical recently announced that the first patient in its Phase II clinical trial has been randomized. This is…

Continue Reading A Phase II Trial for a Personalized Ovarian Cancer ‘Vaccine’ Has Begun

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