September is Primary Biliary Cholangitis (PBC) Awareness Month!
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September is Primary Biliary Cholangitis (PBC) Awareness Month!

September is Primary Biliary Cholangitis Awareness Month! What is PBC? Primary biliary cholangitis (PBC) is a chronic disease of the liver characterized by a slow, progressive damage to the bile ducts…

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This Surgeon Preserved His Hand Function Thanks to New Amyloidosis Drug
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This Surgeon Preserved His Hand Function Thanks to New Amyloidosis Drug

According to a story from the Irish Examiner, treatment with the recently approved drug patisiran helped a British surgeon named Carlos Heras-Palou save both his hands and his career. Patisiran…

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This Dad Climbed a Literal Mountain for His Daughter with Pompe Disease

The Malaysia Lysosomal Diseases Association (MLDA) was formed in 2011 by the hands of eight families. Their goal was to raise awareness and funds for those diagnosed with lysosomal storage…

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NZ Patient With Diffuse Large B Cell Lymphoma Fundraising to Travel to US For Treatment
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NZ Patient With Diffuse Large B Cell Lymphoma Fundraising to Travel to US For Treatment

According to a story from stuff.co.nz., Janelle Brunton-Rennie and Kurt Brunton were celebrating their third wedding anniversary this past January. Little did they know that the next day, their lives…

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Proof of Concept Data Released for Potential Primary Hyperoxaluria Treatment
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Proof of Concept Data Released for Potential Primary Hyperoxaluria Treatment

According to a story from BioPortfolio, the drug development company Dicerna Pharmaceuticals recently announced the release of proof of concept data in its Phase I trial testing the company's experimental…

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Nine Things you Can do this S.E.P.T.E.M.B.E.R. for Histio Awareness Month
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Nine Things you Can do this S.E.P.T.E.M.B.E.R. for Histio Awareness Month

September is Histio Awareness Month! That "histio" refers to histiocytic disorders, which are are a group of diseases that occur when there is an over-production of white blood cells known…

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