According to a story from azcentral.com, the Trump administration has decided to roll back some budget cuts that put the continued existence of regional Hansen's disease clinics in jeopardy around…
Researchers at Western University and the Lawson Health Research Institute have found that increased water drinking does not slow the decline of kidney function in patients with chronic kidney disease,…
Patient Worthy’s partner, The MDS Foundation, will be hosting another wonderful event for MDS patients and caregivers. Event Summary: Whether you are a newly diagnosed patient, a long-term survivor, or a…
The hemoglobin A1C test is a test that is commonly used to determine if patients have diabetes. A study last year in February 2017, by the American Medical Association found…
A woman from the UK, whose husband was diagnosed with Parkinson's disease many years ago, has the unique distinction of being able to detect the disease in patients through a…
Last week Patient Worthy attended ALD Life’s Community Weekend 2018, where Anne and Joel Buckland from the marketing agency We Do Stories talked about how to bring attention to rare…
Sunday, May 20th is World Autoimmune Arthritis Day! The global awareness day is aimed at raising money, consciousness, and solidarity for the millions of people who suffer from one of many arthritic…
According to a story from The Independent, the 60 years of blood donations from a single man may be directly responsible for saving the lives of 2.4 million babies. The…
New research is showing that patients sometimes use crowdfund websites to pay for fake stem cell transplants and other dubious medical procedures, according to a story from medicalxpress.com. Crowdfunding websites…
The U.S. Food and Drug Administration (FDA) has approved a new use for the treatment Veltassa (patiromer) as an oral suspension (liquid form of the drug) to treat hyperkalemia, a term…
According to a story from CTV News, Triss Hunter is a junior at Ecole Mission Senior Secondary School in the Fraser Valley. This year, she is not being permitted to…
Multiple sclerosis (MS) patients in the United States and other countries around the world are trekking to Russia to undergo a controversial treatment for the neurological disorder that some researchers…
This article contains spoilers The actor-turned-director John Krasinski’s new horror film A Quiet Place has received widespread acclaim, due in part to its representation of deafness. The film is set in post-apocalyptic…
Jordy Cernik isn't afraid of anything. It's not that he has some kind of super ability that makes him fearless or special secret agent training that defies normal reactions to…
An international team of researchers studying the effects of progressive familial intrahepatic cholestasis (PFIC) in children have found that half of the children had received a liver transplant by age…
The Vasculitis Foundation has released a video called “Connect the Dots” to raise awareness about vasculitis within the medical community, reports Newswise. Vasculitis is a frequently misdiagnosed or undiagnosed condition,…
In Cincinnati, there are two children, Taryn and King Walker. They are 13 and 11 years old respectively. Taryn and King are excellent students and attend the School for Creative…
A rare but serious disease caused by flesh-eating bacteria has been studied, and researchers have identified the mechanism by which it progresses. This has lead them towards potentially effective treatments…
According to a story from cafepharma.com, Akcea Therapeutics, Inc. recently announced that the FDA's Division of Metabolism and Endocrinology Products Advisory Committee voted to recommend approval of the therapy Waylivra…
According to a story from medicalxpress.com, a recent study from the University of Birmingham discovered that the progression of multiple sclerosis could be predicted by spinal fluid analysis. This could…
Janet Williams was prescribed Epilim for seizures while she was pregnant. Now her two sons, Lee and Phillip, who are both in their twenties, have health issues related to the…
A year after being approved as the first new treatment for amyotrophic lateral sclerosis (ALS) in 22 years, Radicava is altering the way physicians treat the illness, which is also known…
The family of Tessa Jowell, a UK politician who recently passed away from a brain tumour, have commended the government for their commitment to improving diagnostic and treatment services for…
According to a story from the Hereford Times, a combination of misdiagnosis and a critical mistake to forgo a simple blood test led to the tragic death of Callum Cartlidge.…
Whenever a rare disease family is in crisis, which happens all too frequently, the request for prayers goes out to others, knowing that the response will bring about comfort. Rare…
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