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Daily Archives: January 15, 2019

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Third Party Medical Providers: a Necessity for the Right to Life

Third Party Medical Providers: a Necessity for the Right to Life

  • Post author:Rebekah Palmer
  • Post published:January 15, 2019
  • Post category:Cystinosis

For those with a complicated medical diagnosis, state-funded health insurance bodes little practicality. Patients living with rare and chronic disease must schedule visits to multiple specialty clinics and physicians, especially…

Continue Reading Third Party Medical Providers: a Necessity for the Right to Life
Graphene Might One Day Help Diagnose ALS, MS
source: pixabay.com

Graphene Might One Day Help Diagnose ALS, MS

  • Post author:Scott Carlson
  • Post published:January 15, 2019
  • Post category:Amyotrophic Lateral Sclerosis/Multiple Sclerosis

According to an article at UIC Today, scientists at the University of Illinois at Chicago have conducted experiments suggesting graphene might be useful in diagnosing amyotrophic lateral sclerosis (ALS) or…

Continue Reading Graphene Might One Day Help Diagnose ALS, MS
Reata Pharmaceuticals Announces Phase 3 Study of ADPKD Treatment

Reata Pharmaceuticals Announces Phase 3 Study of ADPKD Treatment

  • Post author:Scott Carlson
  • Post published:January 15, 2019
  • Post category:Autosomal Dominant Polycystic Kidney Disease/Chronic Kidney Disease

According to an article from PM360, Reata Pharmaceuticals has announced that its end-of-Phase 2 meeting with the Food and Drug Administration went according to plan. The American pharmaceutical company based…

Continue Reading Reata Pharmaceuticals Announces Phase 3 Study of ADPKD Treatment
Heidi Jo’s Familial Chylomicronemia Syndrome Story
Heidi Jo in her days of service.

Heidi Jo’s Familial Chylomicronemia Syndrome Story

  • Post author:Kathy Devanny
  • Post published:January 15, 2019
  • Post category:Familial Chylomicronemia Syndrome

Heidi Jo Price, beautiful and brave, has jumped out of airplanes with a pack on her back as a member of the 173 Airborne Brigade Combat Team. What brought this…

Continue Reading Heidi Jo’s Familial Chylomicronemia Syndrome Story
First Patient Enrollment Announced for Angelman Syndrome Nutritional Study
JerzyGorecki / Pixabay

First Patient Enrollment Announced for Angelman Syndrome Nutritional Study

  • Post author:James Moore
  • Post published:January 15, 2019
  • Post category:Angelman Syndrome/Rare Disease

According to a story from BioPortfolio, the keto-medical nutrition company Disruptive Nutrition recently announced that the first patient had been enrolled in a research study which will test a unique…

Continue Reading First Patient Enrollment Announced for Angelman Syndrome Nutritional Study
Finding New Treatment Combinations for Chronic Lymphocytic Leukemia
frolicsomepl / Pixabay

Finding New Treatment Combinations for Chronic Lymphocytic Leukemia

  • Post author:James Moore
  • Post published:January 15, 2019
  • Post category:Chronic Lymphocytic Leukemia/Rare Disease

According to a story from Onclive, combination therapies are likely to play an increasing role in the treatment of chronic lymphocytic leukemia. In this video, leukemia treatment experts discuss the…

Continue Reading Finding New Treatment Combinations for Chronic Lymphocytic Leukemia
How Does a Patient’s Sex Determine Outcomes in Glioblastoma?
OpenClipart-Vectors / Pixabay

How Does a Patient’s Sex Determine Outcomes in Glioblastoma?

  • Post author:James Moore
  • Post published:January 15, 2019
  • Post category:Glioblastoma/Rare Disease

According to a story from The Conversation, scientists have determined that sex plays a significant role in outcomes when it comes to treating the rare and deadly brain cancer glioblastoma.…

Continue Reading How Does a Patient’s Sex Determine Outcomes in Glioblastoma?
Medical First – Boy Born with Gaucher Disease and Kostmann Syndrome
Rainer_Maiores / Pixabay

Medical First – Boy Born with Gaucher Disease and Kostmann Syndrome

  • Post author:Scott Carlson
  • Post published:January 15, 2019
  • Post category:Gaucher Disease/Neutropenia

According to an article at Gaucher Disease News, the first known case of a person with both Gaucher disease and severe congenital neutropenia was examined in a case study that…

Continue Reading Medical First – Boy Born with Gaucher Disease and Kostmann Syndrome
First “Right-To-Try” Drug Administered to Glioblastoma Patient

First “Right-To-Try” Drug Administered to Glioblastoma Patient

  • Post author:Trudy Horsting
  • Post published:January 15, 2019
  • Post category:Glioblastoma/Rare Disease

The Right-To-Try Law is a federal legislation which allows terminally ill patients the opportunity to use experimental drugs that don't yet have FDA approval. It's controversial at best, but some…

Continue Reading First “Right-To-Try” Drug Administered to Glioblastoma Patient

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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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