Can Amyotrophic Lateral Sclerosis Patients Speak Again With New Technology?

The Importance of Speech The ability to speak gives individuals not only the opportunity to communicate with one another, it provides an outlet for expression, creativity, and connectedness. Unfortunately, that…

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4-Year-Old Girl Joins Clinical Trial to Relieve Itching Associated With Alagille Syndrome
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4-Year-Old Girl Joins Clinical Trial to Relieve Itching Associated With Alagille Syndrome

According to a story from abc13.com, Makenna Brown, a four-year-old girl from Texas, has been plagued by relentless itching thanks to her Alagille syndrome, a rare genetic disorder. Her distressed…

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New Funding Program to Support Newborn Screening for Duchenne Muscular Dystrophy
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New Funding Program to Support Newborn Screening for Duchenne Muscular Dystrophy

Duchenne Muscular Dystrophy Duchenne muscular dystrophy (DMD) is a rare, progressive, and fatal condition. It primarily affects males (1 out of every 3,600 to 6,000 male births). It's caused by…

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Bernie Sanders Fights Back Against 375,000 Price Tag for Lambert-Eaton Myasthenic Syndrome Treatment

Lambert-Eaton Myasthenic Syndrome Lambert-Eaton Myasthenic syndrome (LEMs) is a rare autoimmune disease. The body's immune system targets nerve cells meaning patients experience muscle weakness. Other symptoms of LEMs include difficulty walking…

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