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Daily Archives: April 27, 2020

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Guidelines for Treating Inflammatory Bowel Disease During COVID-19
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Guidelines for Treating Inflammatory Bowel Disease During COVID-19

  • Post author:Jessica Lynn
  • Post published:April 27, 2020
  • Post category:COVID-19/Inflammatory Bowel Disease

As COVID-19 continues to spread, more and more people are wondering how they might be affected. If you're a member of the rare disease community, you know it can be…

Continue Reading Guidelines for Treating Inflammatory Bowel Disease During COVID-19
CYNK-001 Application Cleared by the FDA for use in COVID-19 Patients

CYNK-001 Application Cleared by the FDA for use in COVID-19 Patients

  • Post author:Rose Duesterwald
  • Post published:April 27, 2020
  • Post category:COVID-19/Rare Disease

As noted recently in an article published by Cancer Network, the FDA has cleared CYNK-001 for use in COVID-19 patients. When the investigational new drug (IND) application is submitted to…

Continue Reading CYNK-001 Application Cleared by the FDA for use in COVID-19 Patients
Telemedicine During COVID-19: Not for Everyone

Telemedicine During COVID-19: Not for Everyone

  • Post author:Kendall Mason
  • Post published:April 27, 2020
  • Post category:Chronic Kidney Disease

Due to the current COVID-19 pandemic, it is very difficult for people to visit their doctors. For some, this is not the biggest deal; they can stand to miss an…

Continue Reading Telemedicine During COVID-19: Not for Everyone
A Guide to Grocery Shopping During COVID-19
source: pixabay.com

A Guide to Grocery Shopping During COVID-19

  • Post author:James Moore
  • Post published:April 27, 2020
  • Post category:COVID-19/Rare Disease

According to a story from Live Science, the ongoing coronavirus/COVID-19 pandemic has upended daily life in a myriad of ways and can make leaving the house feel a little intimidating.…

Continue Reading A Guide to Grocery Shopping During COVID-19
When CIDP Paralyzed his Hands, He Painted With His Mouth

When CIDP Paralyzed his Hands, He Painted With His Mouth

  • Post author:Sunniva Bean
  • Post published:April 27, 2020
  • Post category:Rare Disease

Alex Biagi was planning to try out for his high schools basketball team, and could already dunk. He said his dream was to be a professional basketball player. He grew…

Continue Reading When CIDP Paralyzed his Hands, He Painted With His Mouth
FDA Approves Merck’s KEYTRUDA® in Small Cell Lung Cancer

FDA Approves Merck’s KEYTRUDA® in Small Cell Lung Cancer

  • Post author:Rose Duesterwald
  • Post published:April 27, 2020
  • Post category:Cancer/Rare Disease

According to an article in the Asco Post, the FDA granted accelerated approval to Merck's KEYTRUDA®, pembrolizumab, for the treatment of metastatic small cell lung cancer (SCLC). The drug targets…

Continue Reading FDA Approves Merck’s KEYTRUDA® in Small Cell Lung Cancer
ICYMI Fulcrum Therapeutic’s Sickle Cell Disease Treatment On Track for a New Drug Application
source: pixabay.com

ICYMI Fulcrum Therapeutic’s Sickle Cell Disease Treatment On Track for a New Drug Application

  • Post author:Sunniva Bean
  • Post published:April 27, 2020
  • Post category:Muscular Dystrophy

As reported in Biospace, Fulcrum Therapeutics has announced it will be submitting an application to the FDA for FTX-6058 as an Investigational New Drug (IND) by the end of 2020…

Continue Reading ICYMI Fulcrum Therapeutic’s Sickle Cell Disease Treatment On Track for a New Drug Application
COVID-19: How Should the Rare Disease Community Respond?
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COVID-19: How Should the Rare Disease Community Respond?

  • Post author:James Moore
  • Post published:April 27, 2020
  • Post category:COVID-19/Rare Disease

On Wednesday April 22nd, 2020, the World Orphan Drug Congress held a one hour webinar that was focused on how the rare disease community could respond to the ongoing coronavirus/COVID-19…

Continue Reading COVID-19: How Should the Rare Disease Community Respond?

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