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Daily Archives: May 18, 2021

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Pleural Mesothelioma Study Evaluates Prolonged Survival
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Pleural Mesothelioma Study Evaluates Prolonged Survival

  • Post author:James Moore
  • Post published:May 18, 2021
  • Post category:Mesothelioma

According to a story from asbestos.com, patients surviving for five years or more with pleural mesothelioma is still uncommon. However, in those that do, exposure to lower levels of asbestos…

Continue Reading Pleural Mesothelioma Study Evaluates Prolonged Survival
Virtual Kidney March to Take Place Aug. 9 to Sept. 12
Source: Pixabay

Virtual Kidney March to Take Place Aug. 9 to Sept. 12

  • Post author:Jessica Lynn
  • Post published:May 18, 2021
  • Post category:Cystinuria-lysinuria

  Unfortunately, the COVID-19 pandemic has sidelined many events, fundraisers, and other opportunities over the last 14 months. But the pandemic won't stop the Kidney Foundation of Canada from holding…

Continue Reading Virtual Kidney March to Take Place Aug. 9 to Sept. 12
Soticlestat Reduced LGS and Dravet Associated Seizures
source: pixabay.com

Soticlestat Reduced LGS and Dravet Associated Seizures

  • Post author:Jessica Lynn
  • Post published:May 18, 2021
  • Post category:Dravet Syndrome/Lennox-Gastaut syndrome

  This year, the American Academy of Neurology (AAN) Annual Meeting took place virtually from April 17-22, 2021. During the meeting, a variety of stakeholders discussed new treatments and research…

Continue Reading Soticlestat Reduced LGS and Dravet Associated Seizures
Patient Recruitment is the Elephant Slowing the Speed of Clinical Trials
source: pixabay.com

Patient Recruitment is the Elephant Slowing the Speed of Clinical Trials

  • Post author:James Moore
  • Post published:May 18, 2021
  • Post category:Rare Disease

Written by Harsha K. Rajasimha, MS, PhD & Sharlene Brown, PhD Clinical trials are the regulatory mechanisms agencies like the Food and Drug Administration (FDA) use to evaluate and review…

Continue Reading Patient Recruitment is the Elephant Slowing the Speed of Clinical Trials
48 Genes Identified that Predict Mesothelioma Survival
qimono / Pixabay

48 Genes Identified that Predict Mesothelioma Survival

  • Post author:Jessica Lynn
  • Post published:May 18, 2021
  • Post category:Mesothelioma

Currently, there is no cure for mesothelioma, and many treatment options revolve around surgery, radiation, or therapy. But could targeted treatment and precision oncology provide better patient outcomes? According to…

Continue Reading 48 Genes Identified that Predict Mesothelioma Survival
Sleep Needs to be More Carefully Considered in Patient Care

Sleep Needs to be More Carefully Considered in Patient Care

  • Post author:Trudy Horsting
  • Post published:May 18, 2021
  • Post category:Rare Disease

Research has identified that individuals with sleep issues are at a higher risk for developing chronic diseases. Unfortunately, many with sleep disturbances are undiagnosed. It's estimated that between 40 and…

Continue Reading Sleep Needs to be More Carefully Considered in Patient Care
Alissa is the First Child to Receive Gene Therapy in Her Brain and Spinal Cord
source: pixabay.com

Alissa is the First Child to Receive Gene Therapy in Her Brain and Spinal Cord

  • Post author:Rose Duesterwald
  • Post published:May 18, 2021
  • Post category:Sandhoff disease/Tay-Sachs Disease

   According to a recent article in USA Today, the decades-old vision of gene therapy has become a reality for a Danish couple. Thomas Felborg, his wife Daria Rokina brought…

Continue Reading Alissa is the First Child to Receive Gene Therapy in Her Brain and Spinal Cord
Breast Cancer Treatment: Positive Results in KEYTRUDA Trial
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Breast Cancer Treatment: Positive Results in KEYTRUDA Trial

  • Post author:Kendall Mason
  • Post published:May 18, 2021
  • Post category:Breast Cancer

Triple-negative breast cancer (TNBC), a rare and aggressive form of cancer, occurs when one's cancer is negative for progesterone receptors, estrogen receptors, and an excess of the HER2 protein. This…

Continue Reading Breast Cancer Treatment: Positive Results in KEYTRUDA Trial
Mama Bear Knows Best: A Jordan’s Syndrome Story Part 2

Mama Bear Knows Best: A Jordan’s Syndrome Story Part 2

  • Post author:Patient Worthy Contributor
  • Post published:May 18, 2021
  • Post category:Jordan's Syndrome

This is part 2 of this story, click here to read part 1! Michelle had taken her daughter to see a geneticist who promptly diagnosed her with  achondroplasia. He ordered…

Continue Reading Mama Bear Knows Best: A Jordan’s Syndrome Story Part 2

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