Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Monthly Archives: May 2021

  1. Home>
  2. 2021>
  3. May>
  4. Page 8
Study of the Week: Eliminate Cow’s Milk Products to Treat Pediatric Eosinophilic Esophagitis
source: pixabay.com

Study of the Week: Eliminate Cow’s Milk Products to Treat Pediatric Eosinophilic Esophagitis

  • Post author:James Moore
  • Post published:May 3, 2021
  • Post category:Eosinophilic Esophagitis

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: Eliminate Cow’s Milk Products to Treat Pediatric Eosinophilic Esophagitis
Can Bacterial Meningitis Evade the Immune System?
source: pixabay.com

Can Bacterial Meningitis Evade the Immune System?

  • Post author:Kendall Mason
  • Post published:May 3, 2021
  • Post category:Bacterial meningitis

Bacterial meningitis is a severe bacterial infection that results in inflammation in the brain. Medical professionals are still trying to fully understand this condition, especially how it interacts with the…

Continue Reading Can Bacterial Meningitis Evade the Immune System?
ARO-AAT Shows Benefits for Patients with A1AD

ARO-AAT Shows Benefits for Patients with A1AD

  • Post author:Jessica Lynn
  • Post published:May 3, 2021
  • Post category:Alpha-1 Antitrypsin Deficiency

About six months ago, pharmaceutical company Takeda pledged $300M towards developing Arrowhead Pharmaceuticals' ("Arrowhead") ARO-AAT, an RNA-silencing treatment for patients with alpha-1 antitrypsin deficiency (A1AD). According to Fierce Biotech, the…

Continue Reading ARO-AAT Shows Benefits for Patients with A1AD
FERRIPROX FDA-Approved for Iron Overload in SCD
source: pixabay.com

FERRIPROX FDA-Approved for Iron Overload in SCD

  • Post author:Jessica Lynn
  • Post published:May 3, 2021
  • Post category:Sickle Cell Disease

In a news release from May 1, 2021, Chiesi Global Rare Diseases, a business unit of the pharmaceutical company the Chiesi Group, shared its FDA acceptance of FERRIPROX (deferiprone). Altogether,…

Continue Reading FERRIPROX FDA-Approved for Iron Overload in SCD
A Drug Spurring Growth in Children With Dwarfism Causes Controversy
source: pixabay.com

A Drug Spurring Growth in Children With Dwarfism Causes Controversy

  • Post author:Sunniva Bean
  • Post published:May 3, 2021
  • Post category:Achondroplasia/Dwarfism

Not everyone in the little people community is advocating for the controversial drug that’s promising to increase the growth of people with achondroplasia, the most common type of dwarfism. The…

Continue Reading A Drug Spurring Growth in Children With Dwarfism Causes Controversy
LaMarcus Aldridge Retires Because of Wolff-Parkinson-White Syndrome
source: pixabay.com

LaMarcus Aldridge Retires Because of Wolff-Parkinson-White Syndrome

  • Post author:James Moore
  • Post published:May 3, 2021
  • Post category:Wolff-Parkinson-White syndrome

According to a story from MSN, basketball player LaMarcus Aldridge of the Brooklyn Trail Blazers has made the fateful decision to retire due to concerns about an irregular heartbeat he…

Continue Reading LaMarcus Aldridge Retires Because of Wolff-Parkinson-White Syndrome
Medical Algorithm Can Detect Early CKD
source: pixabay.com

Medical Algorithm Can Detect Early CKD

  • Post author:Jessica Lynn
  • Post published:May 3, 2021
  • Post category:Chronic Kidney Disease

For patients with chronic kidney disease (CKD), the diagnostic journey can be long and arduous. Unfortunately, many individuals are not diagnosed until later stages of the disease. As a result,…

Continue Reading Medical Algorithm Can Detect Early CKD
  • Go to the previous page
  • 1
  • …
  • 5
  • 6
  • 7
  • 8

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info