How This Family Is Using Halloween to Raise Money for NGLY1 Deficiency
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How This Family Is Using Halloween to Raise Money for NGLY1 Deficiency

Now that it's officially October, it's time to celebrate my personal favorite holiday - Halloween. That means haunted houses, scary movies, creative costumes, and spooky decorations. One Transcona family is…

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India Develops Silicosis Screening Test
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India Develops Silicosis Screening Test

Silica is a naturally occurring substance found in various types of rocks, clay, and sand. Unfortunately, when this silica dust is inhaled, especially over long periods of time, it can…

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October is Spina Bifida Awareness Month!
Source: https://www.spinabifidaassociation.org/blog/10awarenessmonth2021/

October is Spina Bifida Awareness Month!

Did you know—October is known as Spina Bifida Awareness Month, with October 25 being designated as World Spina Bifida and Hydrocephalus Day? That means, all October long, you can help…

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The Secret Sauce for Bringing Innovative Therapies to Patients with Rare Diseases Faster
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The Secret Sauce for Bringing Innovative Therapies to Patients with Rare Diseases Faster

Written by Lori Lawter, MPH We’ve heard a lot about bringing drugs to market lately, especially in light of the COVID-19 vaccine.  You might wonder, “Is there a ‘secret sauce’…

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New Collaboration to Develop REV-0100 for Stargardt Disease
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New Collaboration to Develop REV-0100 for Stargardt Disease

Sometimes, companies work together to develop the best therapeutic options for patients. According to Optical Prism, biopharmaceutical company reVision Therapeutics, Inc. and specialty pharmaceutical company Aequus Pharmaceuticals Inc. recently joined…

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