September 7 is World Duchenne Awareness Day: Spreading Duchenne Muscular Dystrophy Awareness
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September 7 is World Duchenne Awareness Day: Spreading Duchenne Muscular Dystrophy Awareness

September 7, 2021 will be recognized as World Duchenne Awareness Day. This day will be set aside in recognition of awareness surrounding Duchenne muscular dystrophy, a rare and debilitating genetic…

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AI Vastly Improves Enrollment in Rare Disease Clinical Trials
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AI Vastly Improves Enrollment in Rare Disease Clinical Trials

Clinical trial recruitment has always been challenging. It is especially challenging for therapies being tested for rare diseases, an already small population. Clinical trials for rare diseases are small out…

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DRC Confirms 2 Yellow Fever Cases
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DRC Confirms 2 Yellow Fever Cases

On July 18, 2021, the World Health Organization (WHO) first reported two cases of yellow fever within the Democratic Republic of the Congo (DRC), shares Outbreak News Today. This rare…

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European Study Demonstrates Need for Faster Diagnosis and Improved Counseling for Pulmonary Fibrosis Patients

A recent study has uncovered just how many people with pulmonary fibrosis (PF) do not receive an immediate diagnosis. This study conducted in Europe was published in Frontiers of Medicine.…

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Abecma for MM Approved by European Commission
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Abecma for MM Approved by European Commission

According to Pharmaceutical Business Review, Abecma (idecabtagene vicleucel), a CAR T-cell therapy designed to treat patients with relapsed and refractory (R/R) multiple myeloma (MM), received conditional marketing authorization from the…

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Scotch Plains, NJ Names September 18 as Usher Syndrome Awareness Day
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Scotch Plains, NJ Names September 18 as Usher Syndrome Awareness Day

At Patient Worthy, we love to see patient advocates and the impact that these advocates have on their communities. For example, brothers Ethan and Gavin Morrobel have worked tirelessly as…

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