Scotch Plains, NJ Names September 18 as Usher Syndrome Awareness Day
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Scotch Plains, NJ Names September 18 as Usher Syndrome Awareness Day

At Patient Worthy, we love to see patient advocates and the impact that these advocates have on their communities. For example, brothers Ethan and Gavin Morrobel have worked tirelessly as…

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LEGO to Introduce Braille Bricks for Children who are Blind! Coming to Stores in 2020

The Importance of Braille For any child with a rare disease that leads to blindness or visual impairment such as Stargardt disease, Usher Syndrome, Alström syndrome, or Retinal Blindness life…

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Learn About These Rare Eye Diseases to Honor Healthy Vision Month!

May is Healthy Vision Month! Rare disease or not, maintaining healthy eye health should be a priority for all of us. The National Institute of Health has resources for not…

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